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Age: 31 Mutations: DF508 and 621+1 g>t Fev1: 92% transplant: April 1999

Age: 31 Mutations: DF508 and 621+1 g>t Fev1: 92% transplant: April 1999

Age: 31 Mutations: DF508 and 621+1 g>t Fev1: 92% transplant: April 1999

I 've had a transplant but never had HRT. I hope someone else is able to give you information...Have you asked your doctors about it?

I 've had a transplant but never had HRT. I hope someone else is able to give you information...Have you asked your doctors about it?

I 've had a transplant but never had HRT. I hope someone else is able to give you information...Have you asked your doctors about it?

Hi all, I just read this great article in the NYT. It's about how the new allocation system for lungs is making it much, much easier (and faster) for people with CF to get transplants. I was so pumped to read this, even though I already got mine 7 years ago. It is GOOD news. Check it out: <a...

Hi all, I just read this great article in the NYT. It's about how the new allocation system for lungs is making it much, much easier (and faster) for people with CF to get transplants. I was so pumped to read this, even though I already got mine 7 years ago. It is GOOD news. Check it out: <a...

Hi all, I just read this great article in the NYT. It's about how the new allocation system for lungs is making it much, much easier (and faster) for people with CF to get transplants. I was so pumped to read this, even though I already got mine 7 years ago. It is GOOD news. Check it out: <a...

I'm so glad to hear she's doing well. Congrats Marjolein!

Amy- Its so strange to me how CF makes us confront these issues before anyone else. I constantly struggle with future vs. now. I've been beating myself up because I am not happy in my grad program, and I just can't stomach the idea of being unhappy in the present so that I can reach some future...

ok, my turn-- me (left) after my first 10 k me and my husband

Amy, I'm so sorry to hear your dad died. Thank you for sharing him with us. His spirit sounds so strong, and I loved hearing about him treasuring the details of life and worrying about your driveways. That says so much to me. I wish you any comfort you can find.

I think it might be what Lindsey said, at least based on my own experience of forgetting. Or maybe it is a timing thing. I find that if I don't take insulin exactly before a meal, it takes a lot more to get it back down than it takes to keep it from rising. Once's my blood sugar is high, is...

I don't know about Brighams, but where I got my transplant it took about a month. It depends on how quickly they can get all the test scheduled, the results back, and make a decision. Mine might have taken less time because they did many of the tests while I was inpatient. In that case, if a...

Sean--about lifespan post-transplant. There is no inherent limit in how long we can live after transplant, like Joanne says. There are some statistics on survival, but comprehensive data is hard to find. What I've found recently. For all lung diseases, the odds of surviving 5 years...

In response to Sean's question: The cftr protein is a cellular protein, meaning that each single cell produces its own cftr protein, and never gets it from other cells. Donor lung cells have their own DNA that produce their own cftr. Hence the lungs are normal and don't get CF. There's no...

After transplant, I had problems with GI motility. The docs suggested pineapple juice, because it helps to dissolve/digest the food sitting in the stomach. So the nurse came in with a couple cans of pineapple juice and a long tube with a squeeze bottle. Pointing at the tube, my question to him...

Hmm....thinking about the numbers... Waste-of-skin prisoners; I haven't thought enough about it. It would be pretty valuable scientificially, because I think we all agree that animals are not the same as people. I'm not saying either one is more valuable. I personally could not stomach it...

Sorry the scientist above was me