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Neat! 1. Do you have CF? Yes - When were you diagnosed? Birth 2. Are you on inhaled meds? Yes - If yes, which ones? Hypertonic saline, Cayston, Tobramycin, Pulmozyme 3. How long does it take to do full treatment? 30-40 mins 4. How many times a day...

Hi there, I am going to try it very soon-just so darn expensive!. A lot of my colleagues at work drink these shakes and I have heard a lot of good things about them. My main issue is that a couple hours after breakfast I get hypoglycemic, so I was hoping this would help sustain my energy (and...

Hi everyone, Anyone on the new Ultresa enzymes? Ever since Ultrase went off the market a couple years ago, my stomach hasn't been the same on Creon. I have had a couple severe bouts of distal intestinal obstruction syndrome (DIOS) and I just felt like the enzyme dose was never quite right...

I was always really skinny as a child and teen. Then when I got into my late 20's, and after my pregnancy as well, my weight went up significantly. At my highest I had a BMI of 30. I am still at a 28-29, but I have been working on getting my weight down with exercise and portion control since...

I bought the documentary when I was in my early 20's, and was definitely not what I expected it to be. I ended up throwing it in the trash right after I watched it and had nightmares about it for a couple weeks. But I think it was just because I had never seen someone deal with CF like him and...

I know you and I are very similar when it comes to these situations and I can always relate to what you say, and this is no different. I also would take that comment a little more to heart than I should. I hate when people bring up my CF in a conversation, because quite honestly I don't want...

I know some of you may already know about this, but just in case anyone is interested - here is a link for a CF exercise program specifically tailored to your exercise goals over a 3-month period. Deadline is Oct. 15th. Sounds like fun! http://www.cysticlife.org/CFit.php I know that exercise...

Thank you all for your replies!

Hi, Ever since moving back to my hometown/state, allergies and sinus issues just showed up in my life and took over! I have tried Claritin and Zyrtec since the spring months, but nothing seems to really get rid of my post-nasal drip and throat irritation. It almost feels like a sinus...

Hi, Where is the pain the worst? Can you tell if it's originating in a certain spot in your back? I had a couple herniated discs, and I know at least once it was from coughing.

Thanks for the info - I think I may need to head to my PCP to get started on some treatment and/or preventative measures. Thanks!

I don't know if it's just me, but I seem to be very prone to bulging discs in my lower back. The first time it happened was a couple years ago - I coughed really hard while blow-drying my hair. When it happened, I couldn't move and was forced into a bent-over position for several minutes...

I have heard some healthcare professionals say that Tobi/Tobra and other inhaled antibiotics are not good for healthy individuals to inhale. I believe it's due to the chance for resistance to the medication (in the event that person would ever need to be treated for an infection). Not sure if...

IV Solutions and Foundation Care are two of the compounding pharmacies that I know of for tobramycin solutions for the eFlow.

Congrats, wonderful!

I have a rose on my lower back - it was my first of 4 tattoos. There's a Facebook page with a bunch of CF tattoos that people have posted: https://www.facebook.com/CFTattoos

Hi, Thank you very much. I might need to try adding milk of mag for a few days to see if that does anything. I've had an x-ray before when I wasn't experiencing any symptoms, and nothing showed up until I was having active pain. My doctor suggesting upping my enzymes, so that's what I did a...

Hi everyone, Back in January, I got my diagnosis of DIOS when I ended up in the ER with severe abdominal pain, where they found a distal intestinal obstruction on CT scan. Ever since then, I have been taking about 3/4 cap of Miralax twice a day. If I go below that amount, I end up with the...

Hi, I get all my meds from CVS, except for my eFlow meds I get from IV Solutions and my vitamins from CF Services.

The same thing always happens to me when I'm on Cipro. I haven't taken Cipro for 10+ years because of how it would make me nauseas/vomit right after taking it for about 1-2 hours after. I actually tolerated it for many years before I had issues. Sorry that I don't have any advice, but it...