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B - Thanks. I did have surgery at birth, so maybe there is scar tissue. Hoping it doesn't happen again though :) Joni - Oh no! On Christmas Eve :( That's great that your surgeon listened to your CF doctor. I had a really hard time even getting anyone to call mine. I kept telling them that I...

Oh cool. I'll make sure I ask about that too - thanks!

Falloutboygurl16 - Thanks for your reply. I am planning on calling my MD tomorrow to see what sort of maintenance I should be doing, because I surely don't want to experience that again! What exactly does the magnesium citrate do? I have never heard of that. Thanks.

Hello, Well, got admitted last week. Turns out my tummy issues were actually related to a blockage brewing. I have been having stomach pains for months after I ate, and then finally last week I ended up in the ER. They did a CT scan and found a blockage. Luckily because I was still having...

When I first started Cayston, I coughed so much. It was a really annoying cough, almost dry and hacky. It would keep me up all night even. But since I have been on it over a year now, I am able to tolerate it just fine. I still occasionally have a cough from it, but it's a lot less than it...

I ran into another CFer at my work as well. Where I used to work, we had an outside company come in and each day was someone new. One day a girl came in who we had never seen before and she was coughing terribly. Her cough was pretty constant and finally one of my coworkers asked her if she...

Which company do you go through? Is it for Tobramycin or Cayston? I use IV Solutions and they send me replacement pieces as needed since I get both meds through them.

I have a 4-year-old who sounds just like that! He wants to do the opposite of what he's supposed to. He does not have CF, but hates any attention and does not want anyone to mention things that he should be getting praised for. It's strange to me, but I guess it's his personality. I'm...

Thanks for the replies. I still can't figure out if DIOS is what I'm actually experiencing or not. Once in awhile (maybe once a month or so), I get really bad cramping and bloating after eating something. My entire abdomen gets hard and these pains cover my entire stomach. For the longest...

Hello, My doctor mentioned that I may have DIOS issues, but I'm not quite sure what the symptoms of that are. Has anyone experienced DIOS and what does it feel like? I occasionally get cramping in my stomach after eating and other times I get pain in my side/back unrelated to eating (both...

Awesome-ness! You are a champion Jerry! Total inspiration!

Good luck today with your lithotripsy! It's a piece of cake. Keep us posted.

Thanks. I called Hill-Rom and they are shipping a new one overnight. Glad there's a lifetime warranty on these things!

Thanks a lot!

Hello, I have Hill-Rom vest that I got probably about 3 years ago. It's been acting funny for a few months now, where it loses pressure and speed and then catches back up by going faster. It's gotten worse tonight where it's almost making me nauseous by the way it goes fast and then slow...

There shouldn't be any physio that you cannot do - keep up with it so you stay healthy.

Not sure if anyone posted this or not, but there is a FB page for CF tattoos - lots on there https://www.facebook.com/#!/CFTattoos I have one rose on my lower back related to CF (and 2 other tattoos)

I have had kidney stones for 12 years related to CF. I had been passing them all until last year, when I had a couple 8mm stones that couldn't be passed - so I opted for lithotripsy. It was such an easy procedure! I had to have it done twice, each time just took the day off of work and...

At the beginning it was really hard for me to tolerate, so I quit it. Then a couple years later I tried it again and now I love the stuff! I have noticed that the longer I am on it, the more I tolerate it and I have found that it's my new BFF.

::raises hand:: Never been on IVs yet - hope I can put that off for awhile. My PFT's are in the 80's.