Cystic Fibrosis Forum (EXP)

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  1. R

    Major disaster in the Northeast, USA

    We too had to evacuate from the area because our power lines fell down in our driveway. It will likely be a long time before they restore power to our house. We are staying with some family, also 2 hrs away, who are of the lucky 20% that didn't lose power in their area. No one in our town has...
  2. R

    Major disaster in the Northeast, USA

    We too had to evacuate from the area because our power lines fell down in our driveway. It will likely be a long time before they restore power to our house. We are staying with some family, also 2 hrs away, who are of the lucky 20% that didn't lose power in their area. No one in our town has...
  3. R

    Major disaster in the Northeast, USA

    We too had to evacuate from the area because our power lines fell down in our driveway. It will likely be a long time before they restore power to our house. We are staying with some family, also 2 hrs away, who are of the lucky 20% that didn't lose power in their area. No one in our town has...
  4. R

    HTS neb

    The HTS takes just as long as my vest treatment, which is 15 minutes - that's using the Pari LC Plus neb.
  5. R

    HTS neb

    The HTS takes just as long as my vest treatment, which is 15 minutes - that's using the Pari LC Plus neb.
  6. R

    HTS neb

    The HTS takes just as long as my vest treatment, which is 15 minutes - that's using the Pari LC Plus neb.
  7. R

    Anybody try AQUADEKS???????????

    Hi there, I absolutely hate AquADEKs. I was really excited for them because I hated having to chew the regular ADEKS, but these were even worse! I got horrible burning/GERD after taking them and ended up burping a vitamin taste all day. I am just not able to tolerate them at all. I am a...
  8. R

    Anybody try AQUADEKS???????????

    Hi there, I absolutely hate AquADEKs. I was really excited for them because I hated having to chew the regular ADEKS, but these were even worse! I got horrible burning/GERD after taking them and ended up burping a vitamin taste all day. I am just not able to tolerate them at all. I am a...
  9. R

    Anybody try AQUADEKS???????????

    Hi there, <br /> <br />I absolutely hate AquADEKs. I was really excited for them because I hated having to chew the regular ADEKS, but these were even worse! I got horrible burning/GERD after taking them and ended up burping a vitamin taste all day. I am just not able to tolerate them at all...
  10. R

    Kidney Stone # 3

    Hi there, I don't have any experience with the lymph/nodule issue, but I have had kidney stones for 12 years now. I heard something like 10-20% of CFers get kidney stones, but no one is exactly sure why it happens (maybe something with the way we absorb nutrients). Anyhow, I have had 2...
  11. R

    Kidney Stone # 3

    Hi there, I don't have any experience with the lymph/nodule issue, but I have had kidney stones for 12 years now. I heard something like 10-20% of CFers get kidney stones, but no one is exactly sure why it happens (maybe something with the way we absorb nutrients). Anyhow, I have had 2...
  12. R

    Kidney Stone # 3

    Hi there, <br /> <br />I don't have any experience with the lymph/nodule issue, but I have had kidney stones for 12 years now. I heard something like 10-20% of CFers get kidney stones, but no one is exactly sure why it happens (maybe something with the way we absorb nutrients). Anyhow, I have...
  13. R

    I have extra Creon.

    What strength?
  14. R

    I have extra Creon.

    What strength?
  15. R

    I have extra Creon.

    What strength?
  16. R

    Cayston in Disney World

    When I'm on the go with my nebs, I always just bring a bottle of water with me and just rinse out the neb pieces when I'm done. Then when I get home I do a more thorough cleaning job. As far as the afternoon dose of Cayston goes....my clinic has decided that compliance is VERY low with the...
  17. R

    Cayston in Disney World

    When I'm on the go with my nebs, I always just bring a bottle of water with me and just rinse out the neb pieces when I'm done. Then when I get home I do a more thorough cleaning job. As far as the afternoon dose of Cayston goes....my clinic has decided that compliance is VERY low with the...
  18. R

    Cayston in Disney World

    When I'm on the go with my nebs, I always just bring a bottle of water with me and just rinse out the neb pieces when I'm done. Then when I get home I do a more thorough cleaning job. <br /> <br />As far as the afternoon dose of Cayston goes....my clinic has decided that compliance is VERY low...
  19. R

    TOBI

    I have also had a similar problem when not being able to tolerate Colistin and Cayston, and Tobi just works wonders for me. I think it's a possibility to take it without a break, but the risk of resistance is much higher of course. And something I have noticed is that the Tobi sort of loses...
  20. R

    TOBI

    I have also had a similar problem when not being able to tolerate Colistin and Cayston, and Tobi just works wonders for me. I think it's a possibility to take it without a break, but the risk of resistance is much higher of course. And something I have noticed is that the Tobi sort of loses...
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