Cystic Fibrosis Forum (EXP)

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  1. R

    TOBI

    I have also had a similar problem when not being able to tolerate Colistin and Cayston, and Tobi just works wonders for me. I think it's a possibility to take it without a break, but the risk of resistance is much higher of course. And something I have noticed is that the Tobi sort of loses...
  2. R

    Craving Carbs

    I have not developed CFRD yet, but I am a carb-a-holic! I LOVE carbs and I crave them all the time. I also suffer from bad hypoglycemia (episodes occur almost daily) and I try to eat every couple hours. But I do find that I'm always grabbing the carb foods and things that will make me feel...
  3. R

    Craving Carbs

    I have not developed CFRD yet, but I am a carb-a-holic! I LOVE carbs and I crave them all the time. I also suffer from bad hypoglycemia (episodes occur almost daily) and I try to eat every couple hours. But I do find that I'm always grabbing the carb foods and things that will make me feel...
  4. R

    Craving Carbs

    I have not developed CFRD yet, but I am a carb-a-holic! I LOVE carbs and I crave them all the time. I also suffer from bad hypoglycemia (episodes occur almost daily) and I try to eat every couple hours. But I do find that I'm always grabbing the carb foods and things that will make me feel...
  5. R

    Has anyone done tobi neb. just once daily

    My doctor mentioned taking Tobi once a day continuously, with no month-off break. He mentioned this as an option for me because I don't really tolerate any other inhaled meds other than Tobi and I also get sick if I have a month off. Although, I have never used Tobi like that, I think it is...
  6. R

    Has anyone done tobi neb. just once daily

    My doctor mentioned taking Tobi once a day continuously, with no month-off break. He mentioned this as an option for me because I don't really tolerate any other inhaled meds other than Tobi and I also get sick if I have a month off. Although, I have never used Tobi like that, I think it is...
  7. R

    Has anyone done tobi neb. just once daily

    My doctor mentioned taking Tobi once a day continuously, with no month-off break. He mentioned this as an option for me because I don't really tolerate any other inhaled meds other than Tobi and I also get sick if I have a month off. Although, I have never used Tobi like that, I think it is...
  8. R

    Disney World

    Hi Kris, I went to Magic Kingdom in June. I asked for a pass that would allow me to wait for rides in a shaded area. Well, turns out it didn't help me much at all get through the crowds (which I thought it would) because almost all of the lines were in a shaded area. I forgot to mention the...
  9. R

    Disney World

    Hi Kris, I went to Magic Kingdom in June. I asked for a pass that would allow me to wait for rides in a shaded area. Well, turns out it didn't help me much at all get through the crowds (which I thought it would) because almost all of the lines were in a shaded area. I forgot to mention the...
  10. R

    Disney World

    Hi Kris, <br /> <br />I went to Magic Kingdom in June. I asked for a pass that would allow me to wait for rides in a shaded area. Well, turns out it didn't help me much at all get through the crowds (which I thought it would) because almost all of the lines were in a shaded area. I forgot to...
  11. R

    Parenting with Cf

    Oh wow, that post just made my day! You are so right - some days I am just so thankful that I made it through the day in one piece and I collapse in my bed. Other days it's just so wonderful to be rolling in the grass with your kids on a beautiful summer evening and realizing how wonderful...
  12. R

    Parenting with Cf

    Oh wow, that post just made my day! You are so right - some days I am just so thankful that I made it through the day in one piece and I collapse in my bed. Other days it's just so wonderful to be rolling in the grass with your kids on a beautiful summer evening and realizing how wonderful...
  13. R

    Parenting with Cf

    Oh wow, that post just made my day! You are so right - some days I am just so thankful that I made it through the day in one piece and I collapse in my bed. Other days it's just so wonderful to be rolling in the grass with your kids on a beautiful summer evening and realizing how wonderful...
  14. R

    Graduate School with CF

    I got an MBA through a university's online program. It was definitely hard work, but it paid off in the end. I know have a great job and I am happy I made the choice. In addition to going to school, I was working full-time and had 2 toddler boys as well. It's definitely not easy to get a...
  15. R

    Graduate School with CF

    I got an MBA through a university's online program. It was definitely hard work, but it paid off in the end. I know have a great job and I am happy I made the choice. In addition to going to school, I was working full-time and had 2 toddler boys as well. It's definitely not easy to get a...
  16. R

    Graduate School with CF

    I got an MBA through a university's online program. It was definitely hard work, but it paid off in the end. I know have a great job and I am happy I made the choice. In addition to going to school, I was working full-time and had 2 toddler boys as well. It's definitely not easy to get a...
  17. R

    Do you stay home to do home ivs or go to work with ivs?

    Hello, I have not been in the situation yet, but I would not be able to be away from work with IVs. My clinic does 1-2 days inpatient and then sends their patient home on IVs for the rest of the IV treatment. So basically I would have to head off to work even with the IVs. I work in my own...
  18. R

    Do you stay home to do home ivs or go to work with ivs?

    Hello, I have not been in the situation yet, but I would not be able to be away from work with IVs. My clinic does 1-2 days inpatient and then sends their patient home on IVs for the rest of the IV treatment. So basically I would have to head off to work even with the IVs. I work in my own...
  19. R

    Do you stay home to do home ivs or go to work with ivs?

    Hello, <br /> <br />I have not been in the situation yet, but I would not be able to be away from work with IVs. My clinic does 1-2 days inpatient and then sends their patient home on IVs for the rest of the IV treatment. So basically I would have to head off to work even with the IVs. I work...
  20. R

    Kidney Stone # 2

    Hi there, I am 30 w/CF and have suffered from kidney stones since I was 18 years old. They are somewhat common in CF (something like 10-20% of CFers get them). There hasn't been a lot of research done on why this occurs, but it does. Anyhow, I have had a couple lithotripsy procedures done to...
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