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Check with the lab to see if they can test from an actual soiled diaper.

Actually I was thinking of what Jesus said: Give onto Caesar those things that are Caesar's and give onto God those things that are God's God bless you, Bill

Jean: Now I'm back!! Bill

If you stated "acute lung issues" you would be accurate. Or on the other hand a handicap card is nice.

Well said, Ratatosk. When you can turn 1.5 Million Dollars into 3.3 BILLION in only a few years, I'm impressed. Bill

Dear Mrs. Believingjesus: Your question was " how do you keep high (insurance) useage from employer. I only suggested that you do what Jesus would do. As a CF Patient who owned a business and who had to make a weekly payroll, I would strongly suggest that you follow my suggestion. Group...

Ask what Jesus would do. Would Jesus lie to his employer in order to have insurance coverage or would he be truthful and inform his employer? Bill

I was dx at age 47. Now that you are being treated, you will find a steady improvement in your health. Good luck, Bill

Movies and Live Theater are things that I had to give up. Gyms are peatry (sp) dishes, so I won't go there. Bill

Dank: I guess that I didn't understand your question. I thought that you wanted to "balance these things in my life". I read all of the postings here and I didn't see anyone suggesting that you stop working. Having "several gym memberships" seems excessive and time consuming to me. Sorry...

cgfg: I had all the same issues. The key here is he is PI. He needs to see a CF Gastro Specialist. Bill

Beccamom: I am not wrong!!! If a Doctor said that he/she was a Brain Surgeon, would you let them open your head up or would you do more investigation into there background? I know that I would and I do. Bill

You have to realize that there are only 24 hours in a day. You need to sleep for 8 of those hours. In the balance you have to fit in 3 square meals (a power bar doesn't count). You need to make time for treatments and Doctors visits. Then you add in the work that you do. To do all of this...

I would GOOGLE Steven D. Freedman, MD, PhD. He is located in Boston at the Beth Israel Deaconess Medical Center. Bill

madmax: The Director of the UC Davis Adult Center is Brian Morrissey, MD. His associate is Carroll Cross, MD. The phone number for an appointment is (916) 734-3728. I have a feel for what you are going through as I was dx at age 47. My PCP wouldn't admit that I had Cystic Fibrosis, he...

For example, Massacusetts General Hospital is an APPROVED CF CENTER. There are more than 2000 Doctors on staff but only 6 are CF SPECIALISTS. Going to a CF CENTER is not enough. As we know, CF CENTERS don't do "screening sweat tests". Mad max33, if I wanted to call you a lier I would have...

madmax33: If you went to an APPROVED CF CLINIC and saw a CF SPECIALIST, he / she would know that you are not too old to be dx with CF. No CF SPECIALIST would tell you that. Something is wrong with your story and you are wasting my time. Get your story together and present the facts including...

Diagnoses for people over 50 is becoming pretty common. I was diagnosed at age 47 and there is a woman on here who was diagnosed at age 76. Go to an APPROVED CF CLINIC and see a CF SPECIALIST. Don't let age hold you back. Bill

You need to go to an APPROVED CF CLINIC and see a CF SPECIALIST. If your Doctor won't give you a referral tell him/her that you will get a NEW DOCTOR who will give you a referral. I was diagnosed at age 47 and there is a woman here who was diagnosed at age 76. Don't let your age interfere...

Worriedmotherof3: There are almost 2000 known mutations, any two will cause CF. You were tested for 40 and your DD was tested for 100. You do the math. I would agree with you regarding retesting, however the test should be for a FULL CYSTIC FIBROSIS SEQUENCING. Bill