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If you stop taking your enzymes, you will learn very quickly why they were Rx in the first place. It may be a good "life lesson" for you to stop taking them. Bill

Depending upon, where in NH that you live, I would suggest that you make an appointment at your nearest Approved Cystic Fibrosis Clinic and see a CF Specialist. Boston Children's Hospital or Dartmouth Medical Center in Lebanon NH are both Approved CF Centers with CF Specialists. Eight years is...

F508 del is a mutation that leads to digestive issues. Your son should be seen at an Approved Cystic Fibrosis Clinic and diagnosed by a CF Specialist. Delta F508 leads to pancreatic insufficiency, which means that the pancreas is not producing enough enzyme to properly digest food, which...

I had two sweat tests, a month apart, each was on the high side or normal. Bill

Rstone: I saw this question hanging here without a reply and I didn't want you to feel unwelcome here. There are almost 2000 known CF mutations, any two will cause CF. Newborn screenings, usually, only test for the most common 32 mutations. You do the math. Inconclusive only means that they...

Zack: Google, Steven D. Freedman, MD, PhD. He is in Boston at the Beth Israel Deaconess Medical Center. I remember having similar pain about 15-20 years ago. When we swallow mucus, and we all do even when sleeping, it eventually mixes with our stool. This becomes a glue like substance and...

Z: You are not locked into just one Clinic. Find a CF Gastro specialist. Bill

While I find your post to be interesting reading, based upon my experience, it is untrue. Bill

Google, Steven D. Freedman, MD, PhD at the Beth Israel Deaconess Medical Center in Boston. You could fly up to see him and return to Tenn the same day. Bill

Marcus: Good luck if you think that fiber will assist in digesting food. Bill

Peter: As much as Cornell is a great hospital, I don't believe that it is an APPROVED CYSTIC FIBROSIS CLINIC. Based upon my history, I would strongly suggest that you ADD an approved CF Center to your medical care at Cornell. Bill

I like to say that the world is full of Doctors who can't spell CF, much less diagnose or treat it. It is my personal experience that Dieticians, even those working in CF Clinics, only have a limited knowledge of CF enzymes. Bill

A CF lung is a "landmine" for a Radiologist not trained in CF. So you could have an improper reading. You are a CF Carrier and your FEV1 is 66% of a "normal" person of your gender, weight and size. YES!!! It is POSSIBLE that you have CF. Good luck, Bill

You need to understand that the enzyme that is normally produced by the pancreas is there to help in the digesting of ALL food, not just fats. Therefore the CREON is a substitute for that enzyme and is needed in the digesting of ALL food. As to the proper dose, we are all different in that...

God Bless YOU oldcflady!!! Bill

I had a downturn in lung function over the past two years, however my FEV1 is still about 60%. I have had very serious digestive issues starting at age 20 and continuing still. Bill

I am also 74 years of age and I was dx at age 47. It is extremely important that you not only be seen at a Adult CF Center but you MUST be seen by a CF Specialist. I expect that your health will improve with CF treatment. Bill

Good for him. Tell him to keep up the good work.

Loma Linda is a great hospital. A pulmonologist is the type of Doctor to see however all pulmonologists are not CF Specialists.

Elizabeth: I don't need to comment you said it all "no he is not doing better". Willful neglect is a crime in all 50 States. Bill