Cystic Fibrosis Forum (EXP)

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  1. P

    problem with mold

    Home Depot or Lowe's carries a kit that will allow you to check for mold in your bedroom. Simple and short money. Bill
  2. P

    The Vest 105 by Hill-Rom

    Diane: Are you sure of ownership. Usually these are rented and the insurance company pays a rental fee to Hill-Rom. Bill
  3. P

    anyone taking beta blockers for high blood pressure?

    I too am on high blood pressure medicine. As more of us are living longer, we are experiencing the medical problems of non CF people our age. I take Clonidine without any side effects. Good luck, Bill
  4. P

    Need Vitamin other than ADEKS and source CF soft gels

    Try the ADEK gels.
  5. P

    Camping

    Pesudomonas is everywhere. In water, in soil, on plants and even on some animals. In short, you cannot protect him from this bacteria. If it would make you feel better, buy some bottled spring water (although it may be in that too). Bill
  6. P

    Stomach bug? deja vu

    This issue is not caused by sharing greasy food. If it were it would be a one or two day thing. He could have a colon obstruction, (stool build up) if so daily Miralax will eventually clear it out. Is he in pain? Bill
  7. P

    Stomach bug? deja vu

    Is he taking enzymes on a regular basis? Bill
  8. P

    stuck trying to find a new cf center

    LL You are the best. I hope that everyone appreciates your thoughtful contribution to this forum. Bill
  9. P

    stuck trying to find a new cf center

    Yes!!! You need to get to an approved CF Center. There are centers in every state that is next to WV. Which state border do you live closest to?
  10. P

    Unproductive, nagging cough

    There is a virus on the east coast that has nothing to do with CF. The symptoms are much like your DD is experiencing. Bill
  11. P

    New to all of this Looking for some help

    Get the Doctor's email address, so that you can ask follow up questions after you get home. Bill
  12. P

    New to all of this Looking for some help

    Write down every possible question that you may have and bring the list with you on Monday Bill
  13. P

    New to all of this Looking for some help

    The ADULT Cystic Fibrosis Center is located at Children's Hospital, University of Missouri, Health Science Center. The Director is Melissa Kouba, MD. The phone number is 573-882-6978. Bill
  14. P

    New to all of this Looking for some help

    Your OB had to send the blood to a "special lab" so I seriously doubt that there is an error in the results. CF is not only one disease, that is there are a world of variations. There are almost 2000 known mutations, any two will cause CF. You are clearly on the mild end of the spectrum...
  15. P

    New to all of this Looking for some help

    Shannon: I was diagnosed at age 47 so let me see if I can help. Because you have been diagnosed with CF, you will not become sicker than you have been. Frankly, as you are treated by a CF Specialist at a Approved CF Center, you will be healthier. It is really important that you go to your...
  16. P

    Are unvaccinated children a threat to PWCF?

    I have an opinion. Stay the hell away from this kid. Bill
  17. P

    High Morning Blood Sugars

    Those are NOT high numbers. High is above 200.
  18. P

    Help! Blue fingers

    See your Doctor and have your oxygen saturation checked> Bill
  19. P

    Yup--laxatives/softeners etc reviews

    Everyone who coughs up mucus, should be taking Miralax or an equivalent. Bill
  20. P

    Coughed up tissue?

    If it continues, have it tested.
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