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You should be telling this to your CF Specialist!!!!

The issue is mucus. When we swallow mucus, even in our sleep, it ends up in the colon where it combines with the stool. It is then a glue that sticks to the walls of the colon. This build up continues and continues upon itself. Daily use of Miralax will allow this to be released. Bill

Good Luck!! Bill

Of course they know a PCP to recommend. ASK!!!

Get your CF Doctor to suggest a PCP. Have your CF Dr, call the new PCP to set up your first appt.

At age 11, he is beginning to feel some independence. It will clear up in a few years!!!!!! Bill

Ask her CF Specialist.

Hospital stays will cause deconditioning. Try walking as exercise. Bill

Yes, he should be tested. Digestive issues (inability to process fats & protein) will give him "tummy issues". Newborn screening is typically for the most common defects, only 32. There are almost 2000 known mutations. He has only been tested for 32. Was his sweat test done at a CF Center...

Sarah: Before you take me to task, read Mama Bean's other posts. Bill

"is all this coughing and wheezing a good thing?' Her Doctor has already answered that. Cough and clear your lungs. All that she is looking for is someone to tell her the Doctor is WRONG. Also two sweat tests done at a CF Center and one done in a hospital.. Hospitals don't do the same...

What is an "Ambrey Amplified Test approval?" It sounds like you are in denial. From what you say, DD has been diagnosed at an APPROVED CF CENTER by a CF Specialist. Get with the program and let the CF Specialists treat her. Bill

To answer yuur question, yes he could have CF. He should go to your nearest APPROVED CF CENTER and see a CF SPECIALIST. Forget about seeing "local Doctors" Bill

Queen: I understand, I really do. It is a very difficult mix. Bll

You are 35, so I'm guessing that your parents are about 60. Trust me when I tell you this;, you will see the day that you will wish that your parents could be with you (and you with them). Love and enjoy what you have before it is taken from you. Bill

Do you think that it could be a "good idea" to call your Doctor? Bill

Sorry VAmom: My remarks re Obama Care should have been directed to Albino15 not to you. Bill

VAmom Four patients die every week while waiting for a donor lung. That is 208 people each year. I have to believe that someone trusted with the selection process chose wisely in determining that Sarah should get her donor lung. Let us not forget that as she now has a chance to live...

Talk to your CF Specialist about BACTERIAL OVER GROWTH. When I corrected this problem I lost 2 inches and 10 pounds. Bill

ENZO: Go for one week without enzymes, you won't be confused any more. Bill