Cystic Fibrosis Forum (EXP)

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  1. P

    First Time Post

    Excellent. Feeling overwhelmed is very understandable. Your CF Team will educate you and you will be up to speed at no time. Trust me, you are not alone. We are all here to support and educate you. Bill
  2. P

    First Time Post

    Welcome to the world of CF. I have CF. I am 73 years of age. In September we celebrated our 51st Wedding Anniversary. There is a thread going on here now, asking those over 55 to sign on. Now to your daughter, she needs to be seeing a CF Specialist at an Approved CF Center. Your local...
  3. P

    Diagnosed three years ago...still fighting for treatment.

    It seems to me, perhaps it is time to leave PR and move to mainland USA.
  4. P

    Parents with HSrs w/CF

    Trust me, very normal.
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    Parents with HSrs w/CF

    CF or not he is 16. My Father used to say when he was 16 his parents were stupid and by the time he was 20, he was amazed as too how much they learned in four years. All that you can do is wait it out. Bill
  6. P

    maybe hyperventalating while running

    Becca: This is an issue that I would discuss with her CF Specialist. Bill
  7. P

    Having a relationship with someone with Cystic Fibrosis

    Aaron: I'm 73 and I have CF. In September we celebrated our 51st Wedding Anniversary. My advise to you would be to treat her as you would any other, non CF, woman. Tell her that you want to be close and assist as much as she will let you. Volunteer to go to the CF Clinic on one, or more...
  8. P

    DF508/i507del I have just been thrown off phase 3 combo trial.

    I'm not clear as to your question. You do not qualify for the study. OK neither do I or many others out here. Your situation is what it is as my, and others, can't be considered for this study. Maybe next time,
  9. P

    Questions with disability at work

    Contact the legal department at CFF.
  10. P

    How many CFers are 55 and older??What is your age if you do not mind telling us? :))

    Not as many here over 55 as I expected.
  11. P

    Revision of Soc Security for those of us with Respiratory Disease

    Social Security Disability and Obamacare are two separate and distinct functions of the Federal Government. In this thread, we are discussing proposed changes to Social Security Disability. These changes are being proposed in the budget that was introduced in the Republican controlled House of...
  12. P

    anyone have problem with blockagae?

    Matt: When I vest I also nebulize a 7% sailine solution. This helps to loosen the mucus and make it easier to bring up. Talk to your CF Specialist about this. Bill
  13. P

    Workplace Discrimination

    Not to ask, as I understand it. The reply is illegal. CFF.org has a free legal dept.
  14. P

    How many CFers are 55 and older??What is your age if you do not mind telling us? :))

    Keefer: There is a woman, who attends the same clinic that I do, who is a few months younger than I am. She is also 73. Bill
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    For you unsporty people

    Put a TV in front of your treadmill.
  16. P

    How many CFers are 55 and older??What is your age if you do not mind telling us? :))

    Happy Birthday, Mark and may you have many many more. Bill
  17. P

    Vitamins

    When we have CF there are many things that don't want to do but we must do them. Taking vitamins is one of the easiest of our self-obligations. Tell your boy (man) to grow up and stop acting like a 10 year old. Bill
  18. P

    Tickly cough!

    In the US we have "ragweed", I am allergic to it and it causes a cough as you describe. Bill
  19. P

    How many CFers are 55 and older??What is your age if you do not mind telling us? :))

    I am over 55, actually I'm 73 (74 in January) I was dx at age 47 but first symptoms at age 3 and first pancreatitis attack at age 8. I'm in Massachusetts. Bill
  20. P

    anyone taking beta blockers for high blood pressure?

    GOOD IDEA KEN, give it a go. Ask for ages. Maybe start at 55. Bill
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