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Arnold Palmer is also accredited.

Nemours is an ACCREDITED CF CENTER. In Jacksonville, Bonnie B. Hudak, MD, is the Director. In Pensacola, Okan Eliemir, MD, is the Director. The nurse who administered the sweat test would have been highly skilled(and trained) in doing that. Good luck Bill

Mayo Clinic was rated #1 in the country two years ago. I remember the Clinic at Boston Children's being shut down, so that the entire CF Staff could go to MN to determine what made Mayo #1. Bill

An accredited hospital is one thing a accredited CF Center is another. For example, Massachusetts General Hospital is an Accredited CF Center. There are more than 2000 Doctors on staff but only 6 are CF Specialists. That being said, the end result may be, like your husband, she may only be...

Turtle: In the Supreme Court decision on the Affordable Care Act, they allowed any State Governor to opt out or portions of this health plan. Both the Governor of Texas and the Governor of South Carolina chose to opt out. There will be a new Governor of South Carolina who will chose to opt...

Hale 2: I think that this is a math problem. Compare the total number of co-pays that you (and family) had this year. Add in any hospital co-pays and deductibles, etc. Compare this to the cost factors of the two insurance plans. With my plan (medicare B) I have chosen to pay the higher...

Aboveallislove: Many years ago, when I was about to go onto medicare, I attended several meetings for Part B coverage. Now medicare does not restrict admission to any hospital but some Part B insurance companies do, most have no restrictions. Here in Massachusetts, I know that both Tufts...

What hospitals are not covering CF?

Politicaljules: Your story is BULLS--T!!!! Bill

Your test was most likely only 100 (or less) mutations. There are almost 2000 known mutations, ant two can cause CF. When I was first tested, in the late 90's, my second mutation had not been discovered. You should contact your nearest Approved Cystic Fibrosis Center, have a sweat test done...

I know it is currently difficult but try to get onto the website. It will be better than the old insurance,

You might find a nurse at the clinic who would be willing to pass your meds along to other patients on the QT. That worked for me. Bill

Thank you Idevoti. All this time I thought that MAC was the same as abscessus. Next you will tell me that Brain Cancer and Breast Cancer are not the same disease. I really appreciate your help. Bill

Male, 73, 153, 5'7"

MAC is still with me. Currently dormant and we are not treating it. It is a , if it leaves me alone, I will leave it alone mode. Bill

Yes, I have and everyone growing MAC has. It is a VERY DIFFICULT TREATMENT and I hated it but the alternative is worse. Don't stand in the way of this treatment!!!!!! Bill

To answer your question, there are almost 2000 known mutations, any two will cause Cystic Fibrosis. Newborn screenings usually only test for the most common 39 mutations. Bill

The Affordable Care Act should be able to help you. Have you tried to log onto it?

I'm curious, why was the policy cancelled? Bill

You might ask your CF Doctor about daily use of Miralax. You might also ask him/her about Bacterial Overgrowth. Bill