Search results

It is 18% Fat and 26% protein. My guess is yes but you could try going without. Bill

Greatbay: I'm 25 miles outside of Boston and when my wife was working her traveling into Boston after work was out of the question. We each have a cell phone and we would chat each day. It was only 10-14 days so it wasn't too bad. We are both retired now and when I had neck surgery in May...

Greatbay: Are you talking about Boston or NH Hospitals? Are you talking about an Approved CF Clinic? Bill

4hats: Great post. I'm glad that you pointed out that the decision was made by your CF Doctor in consultation with the ID Doctor. I believe that this is critical. Bill

Someone tell me what a "Honey Bee Sponsor" is. Bill

Hi: In May I had surgery (non CF) at an approved CF Hospital. CF patients are treated on the 14th floor, I was on the 11th floor. You would have thought that the 14th floor was in another world. On 11, nobody knew anything about CF, really. I told a Nurse a little about the history of CF...

Stacey: One year treatment with the three drugs is standard. I warn you, it is a rough ride. I have grown MAC since 1987 and have been treated with the three drugs two times. A few years ago my CF Doc sent me to see an Infectious Disease Specialist. She finally said "the MAC is not...

My typing is so poor, I don't have the patients for long posts. I need a Dragon. Bill

Eat potato chips, pop corn, anything salty. Snack to your hearts content. Bill

Best of luck with your surgery. Bill

rarab43: FYI, for future reference, GOOGLE Steven D. Freedman, MD, PhD. Beth Israel Deaconess Medical Center. Bill

Gammaw: I understand that my short answers sometimes make me seem "a bit harsh". If you had brain cancer, you would want a brain cancer specialist. If you needed a heart bypass you would want a heart specialist. You would not go to a hospital, "because it is convenient". CF is no different...

rarab43: Digestive issues can, depending upon mutations, be worse than lung problems. It is a misconception that CF is a "lung disease". Bill

badweather: I was dx at age 47 also. I will be 74 in January. I agree with welchwitch, this sounds like a digestive issue. If you can find a Gastro/CF Specialist, you should see him/her, otherwise discuss this with your CF Specialist. Bill

Sometimes I feel like a broken record when I keep saying, CF Patients should be treated only in APPROVED CF CENTERS by CF SPECIALISTS. Bill

Stacey: Sorry to take so long sending this reply. I finished the first 14 days of 750 mg Cepro 2X/day and am now on the second 14 days. I am feeling much better. I had surgery in May. I won't bore you with the details but my lungs filled with sailine and flushed them out. As a result my...

The Cystic Fibrosis Foundation has a Legal Department. If you call them, they will help you with this problem. Good luck and Merry Christmas Bill

You are in Massachusetts, call ANY of the CF Clinics or CF Physical Therapists in ANY CF Hospital. MGH, Boston Children's, Baystate.

Now tell us "the rest of the story". Bill

Elizabeth: I will be 74 in January and I have lived my entire life with CF. Cystic Fibrosis medical treatment is not a democracy, you don't get a vote, much less a veto. Trust me when I tell you that I know something about CF, but I don't have even a small fraction of the knowledge that my CF...