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I have. I'm currently on 14 days of 750mg Cepro 2 X/day. Bill

Ilove: I agree. The last time that I was in for a clean out, the RT had put about 8-10 just outside of my room. They were there for easy access for anyone who needed to get one. It is standard practice in the Boston Clinics. Bill

The clinic/hospital that I go to uses one time use nebulizers. One use and discard. I thought every approved clinic was mandated to use these with CF Patients. Bill

I love: Does your husband attend an Approved CF Clinic/Hospital? Does the hospital follow the protocal as required by the Cystic Fibrosis Foundation? I can't imagine a situation where a patient would get a used nebulizer. Bill

Like all of us, I have been "visited" by a rude nurse. I have simply asked for the Head Nurse, expressed my displeasure and requested that I not see that nurse again. Very simple and it works very well. Bill

Megan: As you know, ND has only one Adult Clinic. You have two choices, either go out of State or wait until a new Doctor is hired. Bill

Yes, the belly aches is a "CF thing". When we swallow the mucus, even in our sleep, it mixes with the digested food and becomes a glue like substance (stool). The stool then attaches to the walls of the colon. As a result the diameter of the colon is reduced. This causes belly aches. Daily...

The Approved CF Centers are CLOSELY controlled by the Cystic Fibrosis Foundation with the goal of parity. While there are still differences, you will be safe with any CF Approved Center. Bill

Justinsmama: Check the lactose post above. Bill

Ashamalie: It sounds like you are keeping his colon clean. Is it possible that he is lactose intolerant? It has the same symptoms. That is common in CFers. I buy only Lactose Free milk and take Lactade with things like Ice Cream. Bill

Is he on daily Miralax??

Oh, I remember you!!!

The only reason that we take enzymes is that the pancrease is not producing enough of the enzyme needed to digest protein and fats. The ability of the pancrease to produce, at least in my case, reduces over a period of time, actually years. There was a time that if I went out to dinner and...

When the consequences of not taking them rises to the level of belly pain and extended bathroom time, they will take on a serious lifetime lesson. Forgetting will be less of an issue. BTY, at 73, I still have been known to forget. Bill

Either he doesn't need them or he will get a serious belly ache and spend considerable time in the bathroom. Based upon my experience, he doesn't need enzymes. Bill

Raspy voice & sore throat sounds better than a reduction in lung function. It is not easy but sometimes we need to make the hard choice. Bill

Happy Birthday

I doubt that there is anything about Maryland that is making her sicker than Washington State. Double Delta F508 is a serious form of CF. I would suggest that you start by having serious conversations with the individual members of her CF Team Tell them what you have said here. I would...

THE ACA IS A GODSEND FOR CF (and other) PATIENTS Everyone who applies for health insurance and pays the premiums is guaranteed coverage. Those who need more care - such as the elderly, pregnant women, and those with pre-existing conditions cannot be denied coverage or have their pre-existing...

welchwitch: All plans covering people with individual coverage and those employed by smaller companies (those with fewer than 50 employees) will be required to including the following Essential Health Benefits: Pediatric services, including dental and vision care. Ambulatory (outpatient)...