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Thanks suziesmom. knowitall is an uneducated high school dropout who likes to shoot his mouth off. Actually, I enjoy his attempts at being rational. Bill

Taylersmom: I didn't begin to become PI until I was 27. It took about 30 years to become 100% PI. Bill

justbecause: Google Steven D. Freedman, MD, PhD. He is at the Beth Israel Deaconess Medical Center in Boston. He is a leading Gastroenterologist in the treatment of patients with CF. He is a presenter at every CFF Conference. NJ is not that far from Boston. Do yourself a favor and check...

Are you taking enzymes with meals? If so which, what strength and how many? Bill

If I was a Doctor, I would Rx Miralax daily and a increase of Creon to 8 with meals (4 at start and 4 half way through). I'm not a Doctor though so suggest it to your CF Specialist. Bill

I know that he/his foundation, funds CF Research at Boston Children's Bill

Take your coupons and have dinner at East Street. Good change of pace and better food. Bill

Nothing is as important to you as sleep!!! You can't study when you are tired. Sleep. Bill

Watch for a PM

If you ever want to chat or email, I will give you my Phone# and/or Email addy. Bill

I have stayed at both MGH and The Brigham. Given that you are at MGH, stay as long as necessary. Say hello to Lenny and Ann for me. Bill

Hi Red: Are you in MGH or the Brigham? Bill

Pat: It takes a "big man" to stand up. You are, clearly a "big man" Bill

LL Even if the Mucus Viscoelastic Properties could improve the Clinical Evaluation of CF the cost would be prohibitive. A cost benefit analysis would be required in every instance. Not only will the dollar cost of an MRI or a CAT be considered, and frowned upon by the Insurance Industry but...

I would bring him to the ER at the Clinic/Hospital ASAP!!! Bill

The type of bacteria growing in the lungs is determined by having a sputum test done on every Clinic visit. The results of the sputum test will determine what, if any, infection is growing in the patients lungs. Test tubes don't lie. Bill

He is 11, he will outgrow it in about 10 years. Bill

I understand that the CF World is overwhelming but I will say it again, Your children need to be seen in an Approved CF Clinic/Hospital by a CF Specialist. I know that the Moms, out here, will join in this message. Good luck, Bill

Libby: I have so many questions. I don't want to give you any false hope but it is very important who diagnoses and treats Cystic Fibrosis. It should not be treated or diagnosed by your local Doctors. If you haven't already, you need to contact the nearest Approved Cystic Fibrosis Clinic and...

I keep wondering which Approved CF Clinics/Hospitals do you go to, where you have all of these problems. I gusee that I am really lucky being treated in Boston. Bill