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Lose the silver. I will answer your data request on why colloidal silver is harmful in a private message. I have credible scientific papers on oral injestion of colloidal silver. Just from the deductions and inductive corollaries presented in research of ingesting silver in any but minute...

Vampy, in a post you mention vitamin numbers being down, possibly contributing to your low endurance. I didn't bite when the topic of 'What you wish you'd known. My CF diagnosis was made at the age of 51. You know the typical vitamin shortage and conditions their low levels can develop. Vitamin...

I ignore all the great advice. I have to admit this is more phobia than anything else. I blow 105% fairly consistently and only from my chst CT's my CF specialist knows when to tie me down for some production. One of my first posts I described a trial encounter with a vest. Having prep'd for...

I did not pay attention to your initial question, in the title of this topic. Your question could be interpreted two ways. "What is the CFTR mutation in this gene test." The CFTR gene in working order is the absence of cystic fibrosis (CF). At the initial discovery of the CFTR gene mutation...

1989, In the 'for what it's worth' department, I am surprised this test was chosen. Since you asked for clarification in this forum, you likely were suspicious of the test as well. Few things are worse than to be sick and not being diagnosed. A similar mutation panel was available about 15 years...

I erred. Rmotion's Greenmedinfo.com had been posted in total in the previous days forum. I didn't notice you had edited it here. For those wishing to read the original version, please note some of my specific comments were referencing it. Something less difficult today is ready sources of any...

After finishing your post, repeated from the previous day, I re-read, printed and re-read the missive from greenmedinfo.com, sorry I missed the title line, that cleared up the information source. I don't know where you were 40 years ago, besides just being born and not ready to read up on HLA DQ...

Wow! I am impressed by all these informative posts. Rmotion; You didn't state a source for your post. Is this from your own research, and therefore your authoritative post? I admit, I read the first two thirds and skimmed the final third. Something containing so much high density information...

Please accept my sympathies. Sort of like the unseemly hot weather, a rash of forum topics recently have brought the sad realities of CF to the surface. Certain talented people, close to the hard realities CF have risen to the occasion and posted some words of great comfort. No child should...

I join with the many who have CF and lost a loved one also with CF. I am 62, being born in 1950, for reasons I will never know, I was diagnosed at the age of 51. My father was diagnosed post-mortem. From a medical standoint, I was a junior version of my father. We both were treated for all the...

Thanks to shay and the great posts. Added to the usual CF meds, I have lived long enough to need medications for typically for the aged. I know, if you all should be so lucky. I too take singulair, and have for years. In the last year, I have been becomming hypomanic. This is a subtle difference...

As a side note, genetic testing isn't all it is cracked up to be. You may find that your daughter is a CF carrier, and since CF requires two identical CFTR gene mutations to be confirmed genetically as CF, the autosomal recessive mantra about carriers not exhibiting ALL the same symptoms of CF...

This story is old enough to shave. I recently have heard in posts and in private messages, this exact problem. I have noticed from long distance bicycle rides (RAGBRAI, criss crossing Iowa in summer @500mi. etc) that when I start out, I am super hydrated with a sports drink like Gatorade, only...

My wife suggested you consider a support group. I would add that you might book some visits with a psychologist for yourself. You have fought the good fight and maybe a mental tune up will help you gird for the battle ahead. You have eschewed enabling your adult son. But depression is a disease...

I did it again. Cystic Fibrosis was one of the first human genetic diseases to be located, decoded etc. The breakthroughs, like kalydeco, limited as it is, has all the right components that just need to be dialed in. The rate of discovery from this point on is that looming super highway behind...

I opened and read your post even though I represent nothing you were asking for. When I was finished reading through the other posts on other topics I came back to this and read all the posts. Bear with me, I am heade somewhere specific with this. Thanks to CF I recieved a pre-natal vasectomy...

Just a little waxing of my childhood. As far as my mother working or not as a result of my chronic health issues, most years her mother was around as needed. A lot depends on how your newborn's potential presentations. I might suggest a special needs newborn care. Either formally or informally...

reamc, Stress! Might I suggest a gun to the temple? Not. Actually you seem to fit right in with the number of Cfers who are too busy to be sick. It is the short story of my life and I am convinced there is some mechanism behind this. I believe for many of not most Cfers, their condition places...

mea culpa. What was I thinking? Being an insuferable know-it-all, with my background, seeing a genetic counselor was a passing remark by my CF specialist. It was a first time visit +/- with him and we were just getting familiar with each other. Genetic Counselors as far as I know, have no State...

Printer: I wish I had your ability to distill information, simply state it and be done. Something I would like to know since possibly I am a younger patient on the same total PI path. I am not yet at your level of Creon, but things happened fast this last year. Do you still have pain from your...