Cystic Fibrosis Forum (EXP)

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  1. R

    Hubby has clinic today.

    Hi Alisha, The way they calibrate the PFT machine can change from time to time depending on different factors. If he gains or loses wait, the calibration changes...as well as other factors. The other funny thing too is that the PFT machine is different from clinic to clinic. I have been seen...
  2. R

    Hubby has clinic today.

    Hi Alisha, <br /> <br />The way they calibrate the PFT machine can change from time to time depending on different factors. If he gains or loses wait, the calibration changes...as well as other factors. The other funny thing too is that the PFT machine is different from clinic to clinic. I...
  3. R

    Medical Travel Cards

    That's really great news!
  4. R

    Medical Travel Cards

    That's really great news!
  5. R

    Medical Travel Cards

    That's really great news!
  6. R

    CF patients having contact with other CFers

    Hi there, I spent many years attending CF camps. I just recently stopped volunteering because I had kids...but I plan to go back to be a counselor again when I can. I believe if you take the proper precautions, it shouldn't be too much of a problem. As long as neither of you has a strong...
  7. R

    CF patients having contact with other CFers

    Hi there, I spent many years attending CF camps. I just recently stopped volunteering because I had kids...but I plan to go back to be a counselor again when I can. I believe if you take the proper precautions, it shouldn't be too much of a problem. As long as neither of you has a strong...
  8. R

    CF patients having contact with other CFers

    Hi there, <br /> <br />I spent many years attending CF camps. I just recently stopped volunteering because I had kids...but I plan to go back to be a counselor again when I can. <br /> <br />I believe if you take the proper precautions, it shouldn't be too much of a problem. As long as...
  9. R

    Question for those on Preventative Antibioitics

    Hey Marci, I have been on MWF Zithro for the past 2 years or so. I was taking the high-does Motrin for inflammation (but had to stop it due to stomach issues), so my MD mentioned the Zithro. It is supposed to help with inflammation as well. I definitely think it's helped me. I don't notice...
  10. R

    Question for those on Preventative Antibioitics

    Hey Marci, I have been on MWF Zithro for the past 2 years or so. I was taking the high-does Motrin for inflammation (but had to stop it due to stomach issues), so my MD mentioned the Zithro. It is supposed to help with inflammation as well. I definitely think it's helped me. I don't notice...
  11. R

    Question for those on Preventative Antibioitics

    Hey Marci, <br /> <br />I have been on MWF Zithro for the past 2 years or so. I was taking the high-does Motrin for inflammation (but had to stop it due to stomach issues), so my MD mentioned the Zithro. It is supposed to help with inflammation as well. I definitely think it's helped me. I...
  12. R

    Syncope?

    Hey Jen, How scary! Well, when I am coughing hard, I definitely feel strange sometimes. I even think I've experienced the leg numbness thing too. But there are times when I cough so hard that I give myself a horrible headache. It happened the other day and I think I saw stars. Could it...
  13. R

    Syncope?

    Hey Jen, How scary! Well, when I am coughing hard, I definitely feel strange sometimes. I even think I've experienced the leg numbness thing too. But there are times when I cough so hard that I give myself a horrible headache. It happened the other day and I think I saw stars. Could it...
  14. R

    Syncope?

    Hey Jen, <br /> <br />How scary! Well, when I am coughing hard, I definitely feel strange sometimes. I even think I've experienced the leg numbness thing too. But there are times when I cough so hard that I give myself a horrible headache. It happened the other day and I think I saw stars...
  15. R

    At a crossroad...

    Hi there, You sound just like me! My parents never talked about me having children; they always told me that I would never be able to have children, that I'd be too sick or it would be too risky for my health. My mom seemed to always push me towards surrogacy or adoption when I was younger...
  16. R

    At a crossroad...

    Hi there, You sound just like me! My parents never talked about me having children; they always told me that I would never be able to have children, that I'd be too sick or it would be too risky for my health. My mom seemed to always push me towards surrogacy or adoption when I was younger...
  17. R

    At a crossroad...

    Hi there, <br /> <br />You sound just like me! My parents never talked about me having children; they always told me that I would never be able to have children, that I'd be too sick or it would be too risky for my health. My mom seemed to always push me towards surrogacy or adoption when I...
  18. R

    Noxafil and kidneystones ?

    Hi there, Kidney stones are somewhat common in people with CF - something like 10-20% of CFers get them. It has something to do with our absorption issues. And I am one of them! I have had kidney stones for 10 years now and just recently I went through 2 lithotripsy procedures. So I'm...
  19. R

    Noxafil and kidneystones ?

    Hi there, Kidney stones are somewhat common in people with CF - something like 10-20% of CFers get them. It has something to do with our absorption issues. And I am one of them! I have had kidney stones for 10 years now and just recently I went through 2 lithotripsy procedures. So I'm...
  20. R

    Noxafil and kidneystones ?

    Hi there, <br /> <br />Kidney stones are somewhat common in people with CF - something like 10-20% of CFers get them. It has something to do with our absorption issues. <br /> <br />And I am one of them! <br /> <br />I have had kidney stones for 10 years now and just recently I went through 2...
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