Cystic Fibrosis Forum (EXP)

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  1. R

    ULTRASE gone, Hate the new pills?

    I was on Ultrase as well and have since switched to Creon. I have had excellent results with the Creon and I actually think they work better than the Ultrase. Maybe he could try the Creon's? I went from Ultrase MT-20's to Creon MT-24's.
  2. R

    ULTRASE gone, Hate the new pills?

    I was on Ultrase as well and have since switched to Creon. I have had excellent results with the Creon and I actually think they work better than the Ultrase. Maybe he could try the Creon's? I went from Ultrase MT-20's to Creon MT-24's.
  3. R

    ULTRASE gone, Hate the new pills?

    I was on Ultrase as well and have since switched to Creon. I have had excellent results with the Creon and I actually think they work better than the Ultrase. Maybe he could try the Creon's? I went from Ultrase MT-20's to Creon MT-24's.
  4. R

    1 week post hospital stay

    Melissa, Sorry to hear that things haven't improved much since your hospital stay last week. Hope the Colistin will work for you!
  5. R

    1 week post hospital stay

    Melissa, Sorry to hear that things haven't improved much since your hospital stay last week. Hope the Colistin will work for you!
  6. R

    1 week post hospital stay

    Melissa, <br /> <br />Sorry to hear that things haven't improved much since your hospital stay last week. Hope the Colistin will work for you!
  7. R

    Interview with Dr. Boyle

    Debbi, Thanks for sharing the video. I never understood how these drugs worked, but Dr. Boyle explains it very clearly and simply. Very exciting!
  8. R

    Interview with Dr. Boyle

    Debbi, Thanks for sharing the video. I never understood how these drugs worked, but Dr. Boyle explains it very clearly and simply. Very exciting!
  9. R

    Interview with Dr. Boyle

    Debbi, <br /> <br />Thanks for sharing the video. I never understood how these drugs worked, but Dr. Boyle explains it very clearly and simply. Very exciting!
  10. R

    Nebulizer Cups Confusion

    It IS confusing! Especially when I'm prescribed a new inhaled drug and I'm not sure which one to use! I was prescribed Colistin a few months ago and I didn't even know which neb cup to use. Turns out, it's the Pari set, which I didn't have anymore and I had to scramble to get one. I currently...
  11. R

    Nebulizer Cups Confusion

    It IS confusing! Especially when I'm prescribed a new inhaled drug and I'm not sure which one to use! I was prescribed Colistin a few months ago and I didn't even know which neb cup to use. Turns out, it's the Pari set, which I didn't have anymore and I had to scramble to get one. I currently...
  12. R

    Nebulizer Cups Confusion

    It IS confusing! Especially when I'm prescribed a new inhaled drug and I'm not sure which one to use! I was prescribed Colistin a few months ago and I didn't even know which neb cup to use. Turns out, it's the Pari set, which I didn't have anymore and I had to scramble to get one. I currently...
  13. R

    Cayston users

    cf4life... There is a difference between the Trio and Altera <b>metal </b>heads. But there is no difference between the <b>plastic </b>pieces. I am only referring to interchanging the plastic pieces with my Tobramycin and Cayston.
  14. R

    Cayston users

    cf4life... There is a difference between the Trio and Altera <b>metal </b>heads. But there is no difference between the <b>plastic </b>pieces. I am only referring to interchanging the plastic pieces with my Tobramycin and Cayston.
  15. R

    Cayston users

    cf4life... <br />There is a difference between the Trio and Altera <b>metal </b>heads. But there is no difference between the <b>plastic </b>pieces. I am only referring to interchanging the plastic pieces with my Tobramycin and Cayston.
  16. R

    how many treatments do you do a day?

    2x/day. Morning and evening consists of: Albuterol, Pulmozyme, Vest, and Tobra Unless I'm on Cayston, then it's 3x/day with just Cayston in the afternoon.
  17. R

    how many treatments do you do a day?

    2x/day. Morning and evening consists of: Albuterol, Pulmozyme, Vest, and Tobra Unless I'm on Cayston, then it's 3x/day with just Cayston in the afternoon.
  18. R

    how many treatments do you do a day?

    2x/day. <br />Morning and evening consists of: Albuterol, Pulmozyme, Vest, and Tobra <br /> <br />Unless I'm on Cayston, then it's 3x/day with just Cayston in the afternoon.
  19. R

    Cayston users

    I will alternate between two of them so that they are completely dry before using them again and/or I will use it to nebulize my tobramycin.
  20. R

    Cayston users

    I will alternate between two of them so that they are completely dry before using them again and/or I will use it to nebulize my tobramycin.
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