Cystic Fibrosis Forum (EXP)

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  1. E

    Chaotic Times for a Toddler

    Hum....playing in traffic. Hadn't considered that one! (SERIOUSLY j/k) ;-) I needed that laugh. THANKS! :-) Em
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    Chaotic Times for a Toddler

    We do TV, I just feel guilty if it is more than say...oh, two hours. I feel like I'm not doing my job as a mom. This whole stay at home thing is new to me, so unlike my "free" moments from work where I devote 90% of that time to her, I'm trying to adjust...I'm going to justify the extra TV time...
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    Chaotic Times for a Toddler

    Our sweet, sweet 22 month old, Lucy (as of now not diagnosed with CF), is not handling all of the chaos and change very well in our home. I know she is quickly approaching two, but she's enduring a lot of change right now and my heart aches for her. She has started really acting out...
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    Books for Siblings?

    Any suggestions for books for siblings to introduce them to CF? I know I can explain it to my step-daughter, however, like most 7 year olds, it will be easier to hold her attention if I have a book. Thoughts, ideas, suggestions? Emily...again! :-( Sorry!
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    Hello

    Becky, This is an incredibly supportive and nurturing group. They have been very helpful in helping me cope with my child's diagnosis. I am in the process of gathering information for a research project on CF and prenatal diagnosis. If I find anything that I think might help, I'll send it your...
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    What questions after your child was diagnosed did you want/need answered immediately?

    I forgot to add...Any help you can give would be greatly appreciated by Sunday, June 18. Again, feel free to email me at ejwiegert@gmail.com with "research" in the subject line so that I won't delete it by accident! Thank you again!
  7. E

    What questions after your child was diagnosed did you want/need answered immediately?

    Dear All: Thank you so much for answering my questions and your continued support of me and my husband as we go through this journey waiting on our precious Abby to get here in August. All of the information you have provided has been of tremendous benefit and has helped us gain some...
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    OT-update on friend in Iraq

    Awesome! Will do! Thanks for the info Julie! Emily
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    My baby is no longer a baby

    I'm dreading my Lucy's 2nd birthday in two months. It is like all of a sudden, you have a child with a strong personality and who is his/her own little person! Liza, he's so "grownie." I have one more year of picking her birthday party stuff before she starts having a real opinion about it! :-)...
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    Referral for CF Testing

    Thanks! Will keep EVERYONE posted. Life is nuts right now without you folks to keep things in perspective! :-)
  11. E

    Referral for CF Testing

    Our pediatrician doesn't feel like Lucy (our 22 month old) is exhibiting enough symptoms to be tested for CF. She has week long bouts of diahrreah (sp) off and on since late March. She lost some weight, but has been maintaing her weight now. She claims to be hungry all of the time. Now that we...
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    Swimming in Lake water?

    Becky, On one of the infant/toddler CF lists that I have joined, they have a debate going on about swimming in general. Email me at wiegerts@gmail.com if you would like for me to forward the emails to you. I'll go through them and pick out the ones that apply to lake swimming. Emily
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    OT but hopefully appropriate to post here

    Julie, Will certainly be thinking and praying for your friend and her family. Unfortunatly, military, governmental, and beaurocratic (sp) consipiracies are the worst since the weakest link is the person or group that gets blamed for the entire thing. Em
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    Swimming in Lake water?

    I don't have any answers, but I'm interested as well. We usually spend a weekend here and there at my aunt and uncle's mountain house and lake lot during the summer. Thanks for asking the question Becky! Em
  15. E

    Transitioning from world of work to work at home

    Liza and Melissa, THANK YOU! I will email/PM WHEN I have questions about getting into a routine and need advice. I am such a dork, I bought BOOKS about how to be a stay at home mom!!! Thanks again! Emily
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    Transitioning from world of work to work at home

    Honesty time: I've never seen myself as the stay-at-home type. A LOT of who I am is wrapped up in my job. Any suggestions to help me transition to being home full-time and taking care of my Lucy (21 months) and the baby due in August? Also, any pointers to helping to promote good health for our...
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    Housing Suggestions

    Dear All: Dave and I have decided to get us closer to Atlanta for possible clinic visits and to get us closer to his job since I have decided to stay home next year (we're already thinking of ways to save money!). I am going to look in the middle Georgia area for rental housing/apartments for...
  18. E

    Expecting Parents of Child with CF

    Dear All: Thank you so much for all of your comments, answers, and reassurances. Dave and I have a follow-up appointment on June 8th with our genetic counselor in Macon for another ultrasound to make sure "Abby" is thriving in utero and to start checking for the blockages mentioned. Please keep...
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    Expecting Parents of Child with CF

    Bless you all for keeping me honest. :-) I am so trying to take a realistic view of the situation and not panic. I am a worst case scenario person/planner and Dave is an optimist, so you can imagine some of the headbutting so far! ;-) Luckily, we are both good sports about it and we know our...
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    Expecting Parents of Child with CF

    Dave and I had our last "monthly" OB appointment before we go to every 2 weeks. We have an appointment the first week of June with the geneticist for another ultrasound to determine if "Abby" (the name we've been tossing around) is growing ok and to check and see about intestinal blockage as you...
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