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<a href="http://www.cff.org/aboutCFFoundation/NewsEvents/3-2-FDA-Approves-Pacreatic-Enzyme-Ultresa.cfm">http://www.cff.org/aboutCFFoundation/NewsEvents/3-2-FDA-Approves-Pacreatic-Enzyme-Ultresa.cfm</a> Another enzyme choice. Too bad our insurance will still only cover Creon and JUST approved...

DS has always had nasal issues. As a baby we'd have to go after him with the dreaded saline drops and booger sucker. And when he was 4 we got him to do sinus rinses when he was really stuffed up. Due to the extra thick consistency of his nasal mucus, I never saw his nose run until he was almost...

Last evening, DH and I were visiting in the kitchen. I was getting neb cups and evening meds ready and we heard DS' vest start up. He put on his vest and turned it on all by himself, without being asked. Sniff, sniff! He's growing up!

<P>DS had a respiratory culture done a week ago Tuesday.  I've mentioned this before that the results come in wayyyy to soon.  Last summer, I think it was only a day or two.  </P> <P> </P> <P>Yesterday I received the "final culture results in the mail".  Culture received at the lab at 17:42 --...

<P>Remember a few years ago when we were trying to figure out why DS was vomiting at odd times -- thought it was his zithromax causing stomach upset, vitamins, not enough salt on hot days, car sickness.  It would be huge amounts of vomit out of the blue...  </P> <P> </P> <P>Turns out that it was...

<P><A href="http://www.inforum.com/event/article/id/337263/">http://www.inforum.com/event/article/id/337263/</A></P> <P> </P> <P>Sonia's family is having a walk in Fargo in her memory tomorrow.</P>

<P>We've done Great Strides, another mom and I have stood for several hours at a local bar selling drink tickets, we've served pancakes...  And as usual, we have the usual suspects -- the family members who are all gung ho at first and then are no shows at the time of the event and then there...

<br>Last weekend we thought DS had finally turned the corner and was eating so well.  He asked DH' cousin for a turkey sandwich for a snack and at the whole thing.  Then a couple hours later had supper, another huge snack. Then middle of the week I noticed he was getting a bit of a head cold --...

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<P>Okay, I should consider this one of those "teachable" moments, but this weekend I was a bit blindsided by an older relative who has a bit of a medical background as a surgical equipment salesperson asking if DS was going to "out grow that" as he gestured toward DS doing his vest & nebs.</P>...

Eeek!  My baby is a 2nd Grader!  He's thrilled!  I'm nervous. 

<P>I've read a few comments on FB lately from parents having problems keeping their children occupied while vesting or doing cpt.  So I thought I'd start a topic where we can post what seems to work best  to make time seem to go faster during treatments with little or no stress.</P> <P> </P>...

We've always used the reusable pari lc plus nebs for DS' pulmozyme, tobi and albuterol/atrovent.  Use disposable sidestream for tobi and duoneb when we travel.   It's time for us to buy neb cups again and noticed there's a Pari LC Sprint.  Is there a difference?

<br>Yesterday it was so hot out, when DS got home I noticed white streaks on the back of his shirt.  Salt!  Which he proceeded to lick.  Yum, Salty!

<P>We've always struggled with DS and his eating.  Associating food with discomfort, feeling full due to issues with adhesions, which lead to an obstruction a couple years ago.  So when we find things he loves, we're thrilled.</P> <P> </P> <P>This past weekend we ate at a greasy spoon diner and...

We're participating in an event this coming fall -- a beer event and there will be a silent auction. Just wondering what types of donations, items have been popular for your events.

<div>This weekend at Great Strides, I met a person whose child was diagnosed via newborn screening, has two mutations.  Started off at our local cf clinic, but moved to a highly ranked clinic in the City. </div> <div>Her child has had pneumonia several times, loose stools,--- never had a solid...

Friend of mine from high school indicated her child was in hospital due to complications from bronchitis, then she posted on FB yesterday afternoon that he was feeling better, tolerating treatments and they'd received test results that morning indicating he has RSV. He's a teenager... RSV was...

Here's ours! <a target=_blank class=ftalternatingbarlinklarge href="http://www.onetruemedia.com/shared?p=d70f416d025f524b9bc219&skin_id=1901&utm_source=otm&utm_medium=text_url">http://www.onetruemedia.com/sh...tm&utm_medium=text_url</a>

When we switched to Creon, we signed up for the nutritional drinks and vitamins; however, DS absolutely hates the Carnation Instant Breakfast VHC. He thinks I'm trying to feed him butter. They've also switched to Abbott, so now the beverages are Ensure based, which I really know he dislikes...