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I was talking with a local mom about her child starting school and it came up in the conversation that both are children are in speech therapy. She wondered if it was a cf thing as she has an older child w/out cf. She seems to think her child has speech delays due to spending the first few...

DS is a pretty sharp cookie, as has been exhibited in his standardized testing and report cards; however, whenever we've met regarding his IEP, which is ONLY for speech services, I tend to get defensive because they ask questions about his intelligence until his teacher whips out info indicating...

I know some people when they travel use disposable nebs as opposed to boiling. We've always used Pari nebs and boiled, but thinking about for our next trip to just get disposable ones. I know Amy Noexcuses posted that she uses Hudson Updraft II's when she travels. We travel with a Pari...

We're looking at taking a trip again. Last time we stayed onsite at a Disney Resort and will probably do so again as DS loves Epcot the best. We're wondering about spending a day or two at Universal. Has anybody been there recently, since Harry Potter opened? Suggestions?

Middle of the night DS' vest turned on by itself. Nothing was near it, nobody/nothing bumped it. Just powered on. Freaky!

DS was very concerned yesterday that he'd have to get a shot or have a blood draw at his well child peds/local CF doctor's appointment yesterday. Despite my assurances otherwise he kept asking. I finally said, "well you will have to have a throat culture". So complete with nasty loogie sound...

Seems like when I get to comfortable, something throws me for a loop. DS started sneezing, has a runny nose -- a rarity for him. Bleah! Walking booger factory. And of course he's got a "well child" appointment with his local peds doctor. Sinus rinses, juice and hopefully I can get him to...

Just got a call from a relative whose 22 month old was exposed to whooping cough at daycare and was put on Zithromax as a precaution. She was wondering if they should just stay home from Thanksgiving until they get culture results which will be available after 4 days on Friday. The child has...

DS is being a little stink about his eating (or lack there of) again. Tonight he dawdled. Slouched in his chair away from his food and when reminded to start eating he said that he was. He specifically asked for a grilled cheese sandwich made out of cheesy bread, with turkey and yogurt on the...

Last weekend we went to the History Museum in the City and one of the exhibits was "Chocolate". Afterwards we went to the gift shop and there was a container of Chocolate Salt -- sea salt, chocolate and vanilla powder. Indications were that it could be sprinkled on broiled fruit or on cookies...

But looks like they're a little spendy -- $59. <a target=_blank class=ftalternatingbarlinklarge href="http://hillrom.skinit.com/">http://hillrom.skinit.com/</a>

A friend of mine with an 8 month old was told to give her child 1 tsp of mucomyst daily to help with constipation. She's so good about taking vitamins and other meds, but due to the taste/smell she's a bit concerned she might associate it with all medications. I know some people here...

I threw a snit last month and cancelled our newspaper subscription. With the refund check I got in the mail, since I had just renewed our subscription, I'm putting the money toward an Ipad. Figure I can read the NY Times in the mornings instead of the local fishwrap. For those of you with...

DS was switched to Creon 12s from Pancrease MT10s late last summer, just days before school started because Pancreaze isn't covered by our insurance plan. DS was started on 1-2 creon for snack & 4-5 for meals. Prior to the switch, we were already thinking DS probably needed to up his dosage of...

DS usually drinks carnation instant breakfast made with whole milk and cream; however, for travel I've gotten the premixed packages which he HATES. Just wondering if anyone's tried this recipe? Figure it's worth a try... <a target=_blank class=ftalternatingbarlinklarge...

We use Source CF chewables, so that is a no brainer; however, wasn't sure what to choose for beverages. Carnation instant breakfast plus or Carnation VHC or the juice type beverages. How do they taste? I always buy the powdered CIB in vanilla and mix with whole milk and cream, but am worried...

It's that time of year again. Got DS' yesterday afternoon. We hope to get ours at the flu blitz clinic next week. There are already a few influenza cases in our region. Nursing homes, but still makes me a tad edgy.

It's that time again. Got DS' flu shot yesterday afternoon. There are a few cases of influenza at nursing homes in our area already, which makes me a little nervous.

I should never have decided to "like" the Cystic Fibrosis Foundation's page on Facebook and should just not even go there. I get increasingly frustrated with individuals posting that their child just have CF of the pancreas and that their child'd lungs will never be affected. It's what their...

DS is always saying "scratch, scratch my back (or leg, arm, toes..)"I'm soooo itchy" or if we're trying to move him along he stops dead in his tracks and starts to scratch. He has no rashes or noticable irritated spots. I wonder if it's that his extra saltiness makes him extra itch. Could...