Cystic Fibrosis Forum (EXP)

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  1. J

    Two CFers together

    I know what you mean about people not understanding...and at the same time this sounds like a clieshay, if they didn't understand U DIDN'T NEED THEM ANYWAY. I was with my now wife for 3 weeks literally when I went in the hospital and got so sick, I didn't even know who she was. That was almost 4...
  2. J

    Two CFers together

    I know what you mean about people not understanding...and at the same time this sounds like a clieshay, if they didn't understand U DIDN'T NEED THEM ANYWAY. I was with my now wife for 3 weeks literally when I went in the hospital and got so sick, I didn't even know who she was. That was almost 4...
  3. J

    Two CFers together

    I know what you mean about people not understanding...and at the same time this sounds like a clieshay, if they didn't understand U DIDN'T NEED THEM ANYWAY. I was with my now wife for 3 weeks literally when I went in the hospital and got so sick, I didn't even know who she was. That was almost 4...
  4. J

    I AM HOME and with a question

    So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting...
  5. J

    I AM HOME and with a question

    So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting...
  6. J

    I AM HOME and with a question

    So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting...
  7. J

    I AM HOME and with a question

    So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting...
  8. J

    I AM HOME and with a question

    So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting...
  9. J

    FEV1 worse then it should be

    Have your doctors notices any PLUGS in your ct scans or chest x-ray. This can ba a reason for the worse than it should be FEV1. I agree with stepping up the excersis. I had a time in my teens when I had worse Fev1's than I have now and soon there after I started to run, cross country, I ran up...
  10. J

    FEV1 worse then it should be

    Have your doctors notices any PLUGS in your ct scans or chest x-ray. This can ba a reason for the worse than it should be FEV1. I agree with stepping up the excersis. I had a time in my teens when I had worse Fev1's than I have now and soon there after I started to run, cross country, I ran up...
  11. J

    FEV1 worse then it should be

    Have your doctors notices any PLUGS in your ct scans or chest x-ray. This can ba a reason for the worse than it should be FEV1. I agree with stepping up the excersis. I had a time in my teens when I had worse Fev1's than I have now and soon there after I started to run, cross country, I ran up...
  12. J

    FEV1 worse then it should be

    Have your doctors notices any PLUGS in your ct scans or chest x-ray. This can ba a reason for the worse than it should be FEV1. I agree with stepping up the excersis. I had a time in my teens when I had worse Fev1's than I have now and soon there after I started to run, cross country, I ran up...
  13. J

    FEV1 worse then it should be

    Have your doctors notices any PLUGS in your ct scans or chest x-ray. This can ba a reason for the worse than it should be FEV1. I agree with stepping up the excersis. I had a time in my teens when I had worse Fev1's than I have now and soon there after I started to run, cross country, I ran up...
  14. J

    Anyone out there having thoughts about dieing becase of CF

    Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays...
  15. J

    Anyone out there having thoughts about dieing becase of CF

    Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays...
  16. J

    Anyone out there having thoughts about dieing becase of CF

    Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays...
  17. J

    Anyone out there having thoughts about dieing becase of CF

    Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays...
  18. J

    Anyone out there having thoughts about dieing becase of CF

    Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays...
  19. J

    I need someone with CF to talk to Please

    Regina, Thanks for the info, I took Ceftaz as i call it for YEARS for my regular exasterbations and this one is diffrent. I feel right in there with u about being totally depressed at finding out about the b-cepecia, especially since I have kept myself from seeing my sister because of this...
  20. J

    I need someone with CF to talk to Please

    Regina, Thanks for the info, I took Ceftaz as i call it for YEARS for my regular exasterbations and this one is diffrent. I feel right in there with u about being totally depressed at finding out about the b-cepecia, especially since I have kept myself from seeing my sister because of this...
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