Cystic Fibrosis Forum (EXP)

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  1. F

    anybody have the gene R117H?

    I'm Delta F508 and R117h, 7T. I'm "mild" diagnosed at 14. My brother has the same mutations, he is asymptomatic at this time. Only has had 3 infections or so. All cleared. I'm so sorry for the shock. Hang in there. Sounds like your boys are healthy; and will likely stay that way. Be well...
  2. F

    Pulmo and HS

    I use the Inhailer albu, just one puff b/c it gives me headaches and panic attacks at two puffs. My doctor said albuterol is a part of the saline routine because they used it in trials and it gets a little deeper in your lungs. He told me I didn't even have to take it, but that it made it work...
  3. F

    Pulmo and HS

    I use the Inhailer albu, just one puff b/c it gives me headaches and panic attacks at two puffs. My doctor said albuterol is a part of the saline routine because they used it in trials and it gets a little deeper in your lungs. He told me I didn't even have to take it, but that it made it work...
  4. F

    Pulmo and HS

    I use the Inhailer albu, just one puff b/c it gives me headaches and panic attacks at two puffs. My doctor said albuterol is a part of the saline routine because they used it in trials and it gets a little deeper in your lungs. He told me I didn't even have to take it, but that it made it work...
  5. F

    Searching for some Recipes

    Heyo. Thanks for the tips. I can't eat Rye, My allergy consists of gluten as well, and rye contains the same gluten as wheat. Kamut and spelt as well. I do cook with brown rice flower, garbonzo, tapioca and a few stranger ones from time to time. I have to not over do it with the rice -- don't...
  6. F

    Searching for some Recipes

    Heyo. Thanks for the tips. I can't eat Rye, My allergy consists of gluten as well, and rye contains the same gluten as wheat. Kamut and spelt as well. I do cook with brown rice flower, garbonzo, tapioca and a few stranger ones from time to time. I have to not over do it with the rice -- don't...
  7. F

    Searching for some Recipes

    Heyo. Thanks for the tips. I can't eat Rye, My allergy consists of gluten as well, and rye contains the same gluten as wheat. Kamut and spelt as well. I do cook with brown rice flower, garbonzo, tapioca and a few stranger ones from time to time. I have to not over do it with the rice -- don't...
  8. F

    girl question on birth control.

    Why were you put on the birth control in the first place? was it because you are sexually active or was it because of long periods? I used to have periods that last 8 days or so. But 12 is pretty long. I'm glad it's stopped, and hopefully it will get more regular now. Still talk to your doc...
  9. F

    girl question on birth control.

    Why were you put on the birth control in the first place? was it because you are sexually active or was it because of long periods? I used to have periods that last 8 days or so. But 12 is pretty long. I'm glad it's stopped, and hopefully it will get more regular now. Still talk to your doc...
  10. F

    girl question on birth control.

    Why were you put on the birth control in the first place? was it because you are sexually active or was it because of long periods? I used to have periods that last 8 days or so. But 12 is pretty long. I'm glad it's stopped, and hopefully it will get more regular now. Still talk to your doc...
  11. F

    Searching for some Recipes

    Yeah. Soy just messes up my stomach. I can handle it is some foods, but most of the things I eat are soy free too just because I can't eat many processed foods as it is with all the other restrictions. It kind of just falls into place and is taken care of through the other things. I haven't...
  12. F

    Searching for some Recipes

    Yeah. Soy just messes up my stomach. I can handle it is some foods, but most of the things I eat are soy free too just because I can't eat many processed foods as it is with all the other restrictions. It kind of just falls into place and is taken care of through the other things. I haven't...
  13. F

    Searching for some Recipes

    Yeah. Soy just messes up my stomach. I can handle it is some foods, but most of the things I eat are soy free too just because I can't eat many processed foods as it is with all the other restrictions. It kind of just falls into place and is taken care of through the other things. I haven't...
  14. F

    Searching for some Recipes

    Hey. Did a quick search on google and came up with this site http://vegetarian.lifetips.com/cat/62082/yeast-free-food-tips/index.html has a bread recipe and a pizza dough recipe on the home page. along with other ideas for yeast free foods. Hope it helps or atleast gets you started. I struggle...
  15. F

    Searching for some Recipes

    Hey. Did a quick search on google and came up with this site http://vegetarian.lifetips.com/cat/62082/yeast-free-food-tips/index.html has a bread recipe and a pizza dough recipe on the home page. along with other ideas for yeast free foods. Hope it helps or atleast gets you started. I struggle...
  16. F

    Searching for some Recipes

    Hey. Did a quick search on google and came up with this site http://vegetarian.lifetips.com/cat/62082/yeast-free-food-tips/index.html has a bread recipe and a pizza dough recipe on the home page. along with other ideas for yeast free foods. Hope it helps or atleast gets you started. I struggle...
  17. F

    Acupuncture or other methods of healing?

    Hiya. I do chiropractic, acupuncture, tea pills and herbal suppletments. I have been doing acupunture for about two years now, and for the last year I have been infection free. I have gotten a few colds/viruses and with acupuncture treatments and Good tea pills, I kicked them without them moving...
  18. F

    Acupuncture or other methods of healing?

    Hiya. I do chiropractic, acupuncture, tea pills and herbal suppletments. I have been doing acupunture for about two years now, and for the last year I have been infection free. I have gotten a few colds/viruses and with acupuncture treatments and Good tea pills, I kicked them without them moving...
  19. F

    Acupuncture or other methods of healing?

    Hiya. I do chiropractic, acupuncture, tea pills and herbal suppletments. I have been doing acupunture for about two years now, and for the last year I have been infection free. I have gotten a few colds/viruses and with acupuncture treatments and Good tea pills, I kicked them without them moving...
  20. F

    What is the normal loss of FEV 1 per year?

    I was told by my doctor just last month that your points can vary up to +/- 10 on any given day, and not to worry about mine. I was 92 and dropped to 84 or something like that, and they just said "No worries" I dunno. I am a "healthier case" and "atypical" as they call me, but still. They said...
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