Cystic Fibrosis Forum (EXP)

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  1. B

    Questions for brainy Adult CFer's about new study drugs

    If the drugs were to alter the environment through encouraging a more normal mucus, presumably some of the infection that thrive in the thick mucus would be easier to control. We can hope any way.
  2. B

    times a day you do pulmozyme

    do you do pulmozyme in addition to hypertonic saline, or instead of?
  3. B

    times a day you do pulmozyme

    do you do pulmozyme in addition to hypertonic saline, or instead of?
  4. B

    times a day you do pulmozyme

    do you do pulmozyme in addition to hypertonic saline, or instead of?
  5. B

    HTS for less

    If you use any antibiotics like tobi or cayston; foundation care ships HTS for free That pharmacy has been great for us
  6. B

    HTS for less

    If you use any antibiotics like tobi or cayston; foundation care ships HTS for free That pharmacy has been great for us
  7. B

    HTS for less

    If you use any antibiotics like tobi or cayston; foundation care ships HTS for free <br />That pharmacy has been great for us
  8. B

    disappointed with CF pharmacy

    we really liked them at first and then had some shipping issues among other things. We switched to Foundation Care and are very pleased.
  9. B

    disappointed with CF pharmacy

    we really liked them at first and then had some shipping issues among other things. We switched to Foundation Care and are very pleased.
  10. B

    disappointed with CF pharmacy

    we really liked them at first and then had some shipping issues among other things. We switched to Foundation Care and are very pleased.
  11. B

    drug study combining the two VX drugs

    looks like the interaction study was done <a target=_blank class=ftalternatingbarlinklarge href="http://clinicaltrials.gov/ct2/show/NCT00966602 ">http://clinicaltrials.gov/ct2/show/NCT00966602 </a> From an earlier press release, it sounds like later this year <a target=_blank...
  12. B

    drug study combining the two VX drugs

    looks like the interaction study was done <a target=_blank class=ftalternatingbarlinklarge href="http://clinicaltrials.gov/ct2/show/NCT00966602 ">http://clinicaltrials.gov/ct2/show/NCT00966602 </a> From an earlier press release, it sounds like later this year <a target=_blank...
  13. B

    drug study combining the two VX drugs

    looks like the interaction study was done <br /><a target=_blank class=ftalternatingbarlinklarge href="http://clinicaltrials.gov/ct2/show/NCT00966602 ">http://clinicaltrials.gov/ct2/show/NCT00966602 </a><br /> <br />From an earlier press release, it sounds like later this year <br /><a...
  14. B

    cause of distended abdomen and how to get rid of it

    our son had it too. They used murilax for about 1 month and adjusted enzymes.
  15. B

    cause of distended abdomen and how to get rid of it

    our son had it too. They used murilax for about 1 month and adjusted enzymes.
  16. B

    cause of distended abdomen and how to get rid of it

    our son had it too. They used murilax for about 1 month and adjusted enzymes.
  17. B

    WTH am I going to do?

    If you got your compressor through your insurance,you have some sort of DME coverge. Most places online will take insurance, and ship, but if they won't take walgreens, the online sources are probably loss. You are on cayston? If you are getting it from foundtion care, ask them if they can...
  18. B

    WTH am I going to do?

    If you got your compressor through your insurance,you have some sort of DME coverge. Most places online will take insurance, and ship, but if they won't take walgreens, the online sources are probably loss. You are on cayston? If you are getting it from foundtion care, ask them if they can...
  19. B

    WTH am I going to do?

    If you got your compressor through your insurance,you have some sort of DME coverge. Most places online will take insurance, and ship, but if they won't take walgreens, the online sources are probably loss. You are on cayston? If you are getting it from foundtion care, ask them if they can...
  20. B

    Eflow

    no to pulmicort, something about the suspension will destroy the head.. we have been given the ok for albuterol, hypertonic saline, pulmozyme, and compounded tobrmycin. we were given new dosing guidance for albuterol.
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