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I have acne issues as long as I can remember. I still belive that it is related to CF. Mucus is so thick it makes us cough, it gives us bacteria. Mucus is so thick it affects our reproductive system. Mucus is so thick that it scars our pancreas. So why wouldnt it affect our skin too? I have oily...
Maybe its a matter of bacteria (antibiotics kill all the good ones and you get an infection). Probiotics might help. The other case is that maybe you need enzymes. Im not pancreatic sufficient myself but i need few enzymes and i have regulated their use through time. What i have noticed (me and...
I'd say relax. You have a healthy child at the moment. You will have to redefine "normal" and 'healthy" from now on so be prepared. Enjoy the nursing, enjoy the first steps, the first words. Hope stands for everyone. Im 23 and im still dreaming a healthy life. Im still hoping that one day i wont...
I would do the talk once again. Kindly but firmly. I would give CF details. Disgusting details. I would add some drama. And then finish up by asking them again NOT TO purposely expose you to viruses again! Do the talk once again. Let them know how you feel and let them know what their actions...
I was wondering if you guys are going for a run when you are sick. I had a congested nose and a sore throat yesterday and today but the day was sunny here and kinda warm, so it thought some running would help me feel better. I wasnt feeling too sick. Would you do it?
I would like to work from home but its difficult to me! Im an English teacher and i am always worried that im gonna catch something from the kids. Im currently starting to pursue a career as a translator but its hard getting a job!
I have a similar story. I was first diagnosed with PA when i was 7. Im not sure if they had nebs back in 1996. They gave me a round of IVs for 2 weeks. I never cultured it again until 2003. I have it since then but as hard as it seems to you now, it is manageable. It is not the end of the world...
Im 23 and single. But i have to admit i think about it often. Like having a child isnt a complicated matter by itself! We also have Cf to consider. Well to be honest i like to think that having a baby even though having CF IS possible. For me the hardest part is finding the right partner...
I think that every person has the right to bring and take their own medication. If you and your child feel responsible enough to do it you should claim that right of yours. Enzymes are not really "medication" for us. They are a very normal thing for a Cfer. Explain that they cannot cause any...
Oh i know! This horrible feeling of having no appetite to eat anything and everything you MUST eat seems disgusting. That horrible feeling of not savoring anything, like having no taste at all. Food is a major pleasure. Im not ready to denounce it.
I would start with that. You should get your...
Story of my life. Seriously. Even when i dont have a cold i need to blow my nose several times a day. When i cough i feel congested the next moment! Every single time. And at nights i keep rolling on the bed. I turn right, my right nostrils gets congested. I turn left, my felt nostril gets...
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