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You have to change the pattern make them get used to it. They say you look healthy. You say im tired. They say cook. You say im on ivs. Turn your phone off while at hospital. Make them go your way. Dont take no for an answer!
I have been using it for 7 years or more! its amazing! Fast silent portable! The neb parts are kinda sensitive and need attention in sterilizing but arent we used to this? Id say go for it. I do Pulmozyme and Tobi.
They made me use a traditional nebulizer with a mask at the hospital to do Pulmo...
If i were you i would act like a spoiled child. I would not cook. Order out. I wouldnt do dishes id ask my kid to do it. I would go and sleep and if theyd wake me up id fall back to sleep. I would make myself my priority! Let others say whatever they want! Do your own thing! Do as many things as...
Im taking 2-3 Creon (10,000) with every meal since i was little! I mean 9-10 a day. Everyone has their own pattern. Give your body some time and monitor the reactions.
PS Why the hell stomachaches (upper stomach) kick in, in the morning? I will never understand.
I think 2roses pretty much covered the issue! Just dont panic! Talk to your doctors! Maybe she need a broncholidator and this makes the whole thing go away! Exercise is so important! Oh one last thing! A stress test would be a very efficient way for her doctors to check her body during exercise...
Well i postponed replying here because i was trying to think this over. Again and i again. What would i do if it was me we were talking about?
New drugs give us hope. Proven and accepted. Transplant is always an option.
-I would start exercising to get my pfts up. I would start exersising to...
Guyz im an expert here! I use those stuff every day! So listen! Take them all, put them on a saucer pan or whatever. Add water and vinegar lets say a spoon of it. Let them boil 3-4 mins. Theyll be brand new!
Sometimes i need Zantac to help me with stomach issues. It hurts some time but i know its due to acid and coughing etc. It really cuts down my appetite when im in this situtation so Zantac helps. Would you think some baking soda on a little water would substitute? I had never thought it before...
greatbay Ι had to do the same with my doc too. She prescribed Aerolin inhaler before Bramitob. She agreed its hard for me to tolerate and its causing me a lot of cough but i need to stay on it. So we tried to monitor if there is any side affects between tobramycin and Budesonide/formoterol i...
Ask your doctor about Bramitob, it is a generic medicine of Tobi. Same thing but it works differenlty for me. Its less thick, more easily tolerated, shorter treatments.
Cayston is also available!
http://www.polyphor.com/pol7080.html They are in Phase I but it sounds promising and revolutionary!
News about Intercell. It is approaching Phase 3. If it works its not that faraway http://www.intercell.com/main/forvaccperts/product-pipeline/pseudomonas-vaccine/
Look! Thats how i get it! Pa stays in our lungs and grows back just because we are a hospitable environment (mucus, not well ventilated lungs). So im thinking if took drugs that treat the underlying cause of CF it will give us less mucus. So a not that hospitable environment. So anti PA drugs...
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