Cystic Fibrosis Forum (EXP)

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    Insights from current 661 or 809 trials

    Ιm checking yahoo's Vertex message board everyday. Im so so anxious to find out something about those trials. I cant wait for the vx 809 phase III to start. What i noticed is that as far as vx 661 is concerned, vertex is not revealing any clues about this phase II before its over. Why is that...
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    Remedies to reduce inflammation and volume of mucus

    @kyeev "Man, if I had to give up drinking milk, I dunno what I'd do..." Totally agreeeeeeeee!
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    Bronchitol: 5% FEV1 improvement with one dose

    Ah its so good to know that we get to have new weapons in our backpacks!
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    Cayston and Coughing?

    If you feel your cough is not your normal cough talk to your doctor about it!
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    Colistin...

    Everytime im on IVs (not Colistin recently) I have mouth problems too. I experience a dryness and i usually have a horrible taste on my mouth. But the worst of all is my tongue. It feels burned, like it happens with hot coffee or tea. It is an awful feeling. It makes me feel so bad and totally...
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    Bronchitol: 5% FEV1 improvement with one dose

    This seems amazing! Have we talked about this again? I live in Europe but i haven't heard about this being on the market! Anyone else who could possibly share experiences?
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    sore muscle from coughing vs coughin a rib out of place

    All my stomach muscles were sore for days after being down with the flu last week. I had also back pains down my spine due to coughing... But it was all during the flu, my normal cough isnt that strong!
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    inhaled levaquin study

    I dont seem to find results from phase 2 anywhere. The study was supposed to have ended 2 months ago! I wonder how is it going.
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    both parents with CF

    I run into this thread so i bring it up. If two people with Cf decided to have children together would IVF be an option? I know its not illegal , but strongly frowned upon. Could a doctor possibly refuse to do that? Im having these thoughts because we are entering a new era on Cf and a lot of...
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    Friends Don't Get It. Frustrating!

    Sometimes its good to just shut every one out of our reality. Just those moments that you dont wanna listen anymore. I do this. I say its enough what im going through i cannot handle anyone elses problems or thoughts.
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    Questions for the guys!!!!

    And dont think that boys and girls differ that much when it comes to CF. Its not a gender thing but genes matter more and every case is different. But im only saying this being a girl myself...
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    Running in Cold Temps

    What about catching a cold? Is that possible? Im running 2-3 times a week since September and i dont wanna quit now. But im also considering the risks. Can anyone more experienced enlighten us please? And when we are talking of cold how many degrees are we talking about?
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    Friends Don't Get It. Frustrating!

    I wiill focus on that "It's especially hard since outwardly we don't always look sick" Im 23 and i have many friends that keep going on, on the phone for hours about their HUGE problems. I have people in my life, that things are going so good for them. Life has been so kind to them. They have...
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    Appetite Stimulant Megestrol

    Are there any natural appetite stimulants?
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    coughing in public -take the quiz- he he he

    I usually ignore people because thats how i act generally in life.
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    CFFT Announces $58 Million CF Drug Discovery Agreement with PFIZER

    Rmotion im curious about this too! But i dont think they are able to say even if they do!
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    treatment of CF patients low doses of amitriptyline

    Well if im not mistaken they noticed a 4-5% increase in PFTs in just 28 days and in a very small amount of patients. It is not impressive but its optimistic. It can be more effective in a long term use. I have to admit that i had no idea what this Amitriptyline was, but as i see here...
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    CFFT Announces $58 Million CF Drug Discovery Agreement with PFIZER

    I wonder why Pfizer keeps everything so much of a secret! Why arent they revealing their pipelines? Too much money on the game maybe? Too much compeition with Vertex?
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    CFFT Announces $58 Million CF Drug Discovery Agreement with PFIZER

    http://www.cff.org/aboutCFFoundation/NewsEvents/11-19-CFFT-Announces-Pfizer-Agreement.cfm We've heard it before that Pfizer has been working on something strong about DF508. Its now getting some publicity over this. I hope we see their correctors soon on the pipeline! Im really optimistic to...
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    Interested in e flow...

    I think you dont have to special order anything!
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