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My 13 year old son Sam, was JUST confirmed to have this. We have been waiting since March to find out what Acid Fast Bacillum he was growing and I am not certain I understand this one at all. Any one else ever had this, been treated or have information site? Thanks

My 13 year old son Sam, was JUST confirmed to have this. We have been waiting since March to find out what Acid Fast Bacillum he was growing and I am not certain I understand this one at all. Any one else ever had this, been treated or have information site? Thanks

<p>My 13 year old son Sam, was JUST confirmed to have this. We have been waiting since March to find out what Acid Fast Bacillum he was growing and I am not certain I understand this one at all. <p>Any one else ever had this, been treated or have information site? Thanks

NO SVT per the cardiologist. one month of a heart monitor shows nothing abnormal. They said he has NO heart issues, but if it continues it could be related to his acid reflux, something called"esaphaugeol spasm". We will wait and see what happens. Also still no answer to what the AFB is that Sam...

NO SVT per the cardiologist. one month of a heart monitor shows nothing abnormal. They said he has NO heart issues, but if it continues it could be related to his acid reflux, something called"esaphaugeol spasm". We will wait and see what happens. Also still no answer to what the AFB is that Sam...

<p>NO SVT per the cardiologist. one month of a heart monitor shows nothing abnormal. They said he has NO heart issues, but if it continues it could be related to his acid reflux, something called"esaphaugeol spasm". We will wait and see what happens. <p>Also still no answer to what the AFB is...

Bill, you are an inspiration!    

Bill, you are an inspiration!

<p>Bill, you are an inspiration! <p> <p>

Hi Cheryl, Sorry to hear what you are going through with Emily. I am curious to hear about the home IV's. Tell me what they send you home with and if she has a port or just a picc line. I would like that option when they determine which AFB he is growing. Sam also cultures staff, mrsa...

Hi Cheryl, Sorry to hear what you are going through with Emily. I am curious to hear about the home IV's. Tell me what they send you home with and if she has a port or just a picc line. I would like that option when they determine which AFB he is growing. Sam also cultures staff, mrsa...

Hi Cheryl, <br /> Sorry to hear what you are going through with Emily. I am curious to hear about the home IV's. Tell me what they send you home with and if she has a port or just a picc line. I would like that option when they determine which AFB he is growing. <br />Sam also cultures staff...

Since my last post, we found toxic mold in our home and have been busy with proper removal and repair to an area that sam spend a great deal of time. No doubt this is a contributoe to his many ailments. i plan to call the Cf team this am and request the meds Jonathon, tks!

Since my last post, we found toxic mold in our home and have been busy with proper removal and repair to an area that sam spend a great deal of time. No doubt this is a contributoe to his many ailments. i plan to call the Cf team this am and request the meds Jonathon, tks!

Since my last post, we found toxic mold in our home and have been busy with proper removal and repair to an area that sam spend a great deal of time. No doubt this is a contributoe to his many ailments. i plan to call the Cf team this am and request the meds Jonathon, tks! <br />

Hi Jonathan, Thanks again for this info. There was an intern doctor who mentioned Wolff parkinson, but then it was omitted. So much happening I cant recall all the reasons but I write all that I can as they speak and keep a notebook to refer to. We dont see the cardiologist until 4/26, he will...

Hi Jonathan, Thanks again for this info. There was an intern doctor who mentioned Wolff parkinson, but then it was omitted. So much happening I cant recall all the reasons but I write all that I can as they speak and keep a notebook to refer to. We dont see the cardiologist until 4/26, he will...

Hi Jonathan, <br /> <br />Thanks again for this info. There was an intern doctor who mentioned Wolff parkinson, but then it was omitted. So much happening I cant recall all the reasons but I write all that I can as they speak and keep a notebook to refer to. We dont see the cardiologist until...

13 year old boy with SVT Jonathan, You are well informed in so many areas, I have read your posts and I am impressed at your knowledge and delivery of it! What is WPW? Are you saying xopenex inhaled is worse than albuterol? Ablation? Destroy part of the heart tissue, thats horrible sounding...

13 year old boy with SVT Jonathan, You are well informed in so many areas, I have read your posts and I am impressed at your knowledge and delivery of it! What is WPW? Are you saying xopenex inhaled is worse than albuterol? Ablation? Destroy part of the heart tissue, thats horrible sounding...