Cystic Fibrosis Forum (EXP)

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  1. M

    13 year old boy in hospital with chest pain possible SVT

    13 year old boy with SVT Jonathan, <br /> You are well informed in so many areas, I have read your posts and I am impressed at your knowledge and delivery of it! <br />What is WPW? <br />Are you saying xopenex inhaled is worse than albuterol? <br />Ablation? Destroy part of the heart tissue...
  2. M

    13 year old boy in hospital with chest pain possible SVT

    New Info AFB = acid fast bacillis Hello Miss T, Can you tell me what the procedure is that you had done, I think you called it an ablation. Sam has not been on albuterol for 9 years, he uses xopenex, and saline and pulmozyme. He is wearing a heart monitor and it needs to be called in 2 times...
  3. M

    13 year old boy in hospital with chest pain possible SVT

    New Info AFB = acid fast bacillis Hello Miss T, Can you tell me what the procedure is that you had done, I think you called it an ablation. Sam has not been on albuterol for 9 years, he uses xopenex, and saline and pulmozyme. He is wearing a heart monitor and it needs to be called in 2 times...
  4. M

    13 year old boy in hospital with chest pain possible SVT

    New Info AFB = acid fast bacillis Hello Miss T, <br /> Can you tell me what the procedure is that you had done, I think you called it an ablation. Sam has not been on albuterol for 9 years, he uses xopenex, and saline and pulmozyme. He is wearing a heart monitor and it needs to be called in 2...
  5. M

    Acid fast baccilis

    Hey Erin and Cheryl, Thanks for the information. I will not know for 3-5 weeks what is growing, thus far we just know its acid fast bacillus. Sams fatigue level is high, and he is back to not feeling well at all, whole body aches, coughing etc. I hope his lung function is not declining this...
  6. M

    Acid fast baccilis

    Hey Erin and Cheryl, Thanks for the information. I will not know for 3-5 weeks what is growing, thus far we just know its acid fast bacillus. Sams fatigue level is high, and he is back to not feeling well at all, whole body aches, coughing etc. I hope his lung function is not declining this...
  7. M

    Acid fast baccilis

    Hey Erin and Cheryl, <br />Thanks for the information. I will not know for 3-5 weeks what is growing, thus far we just know its acid fast bacillus. Sams fatigue level is high, and he is back to not feeling well at all, whole body aches, coughing etc. I hope his lung function is not declining...
  8. M

    Acid fast baccilis

    If anyone has the AFB mycobacterium growing PLEASE write and tell me what it is caused from ( Other than tuberculosis, the skin test was negative), We will not know for 6 more weeks or longer the cause or treatment and I am certainly concerned. Can this be treated or is this the start of a major...
  9. M

    Acid fast baccilis

    If anyone has the AFB mycobacterium growing PLEASE write and tell me what it is caused from ( Other than tuberculosis, the skin test was negative), We will not know for 6 more weeks or longer the cause or treatment and I am certainly concerned. Can this be treated or is this the start of a major...
  10. M

    Acid fast baccilis

    If anyone has the AFB mycobacterium growing PLEASE write and tell me what it is caused from ( Other than tuberculosis, the skin test was negative), We will not know for 6 more weeks or longer the cause or treatment and I am certainly concerned. <br />Can this be treated or is this the start of a...
  11. M

    13 year old boy in hospital with chest pain possible SVT

    New Info AFB = acid fast bacillis Sams last hospital visit was so confusing, with heart trouble and no pnuemonia, we were sent home after 6 days, only to hear that sam has the acid fast baccilum mycobacteria. They had him do a skin test for tuberculosis, but thankfully that came back negative...
  12. M

    13 year old boy in hospital with chest pain possible SVT

    New Info AFB = acid fast bacillis Sams last hospital visit was so confusing, with heart trouble and no pnuemonia, we were sent home after 6 days, only to hear that sam has the acid fast baccilum mycobacteria. They had him do a skin test for tuberculosis, but thankfully that came back negative...
  13. M

    13 year old boy in hospital with chest pain possible SVT

    New Info AFB = acid fast bacillis Sams last hospital visit was so confusing, with heart trouble and no pnuemonia, we were sent home after 6 days, only to hear that sam has the acid fast baccilum mycobacteria. They had him do a skin test for tuberculosis, but thankfully that came back negative...
  14. M

    Sharp excruitiating right lung/shoulder blade pain...

    Carly, Please call your CF clinic Perhaps even the on call pulmonary physician, I know its sunday, but your identifying such a specific pain with fever indicates infection. I am in the hospital right now with my child who had chest pain and it ends up to be an infection. You guys are so in tune...
  15. M

    Sharp excruitiating right lung/shoulder blade pain...

    Carly, Please call your CF clinic Perhaps even the on call pulmonary physician, I know its sunday, but your identifying such a specific pain with fever indicates infection. I am in the hospital right now with my child who had chest pain and it ends up to be an infection. You guys are so in tune...
  16. M

    Sharp excruitiating right lung/shoulder blade pain...

    Carly, <br /> Please call your CF clinic Perhaps even the on call pulmonary physician, I know its sunday, but your identifying such a specific pain with fever indicates infection. I am in the hospital right now with my child who had chest pain and it ends up to be an infection. You guys are so...
  17. M

    Parents of tweenagers

    You guys are great, I have not been on here for awhile, but I am so thankful for Madison's words of wisdom. Jessica, Are you struggling with your treatments? I am in the hospital with Sam, the original one I wrote this message on and so many things have changed. He is no longer on the pump and...
  18. M

    Parents of tweenagers

    You guys are great, I have not been on here for awhile, but I am so thankful for Madison's words of wisdom. Jessica, Are you struggling with your treatments? I am in the hospital with Sam, the original one I wrote this message on and so many things have changed. He is no longer on the pump and...
  19. M

    Parents of tweenagers

    You guys are great, I have not been on here for awhile, but I am so thankful for Madison's words of wisdom. <br /> <br /> <br />Jessica, Are you struggling with your treatments? I am in the hospital with Sam, the original one I wrote this message on and so many things have changed. He is no...
  20. M

    Transitioning to and from hospital life and home life!

    Megan, May I ask how old you are? I CANNOT BELIEVE you have suffered from cardiac arrest? I am in the hospital now with my 13 year old son, who came in here with chest pain. This is a huge concern of mine, but they are saying it is NOT related to CF, and his heart is just reacting to being ill...
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