Cystic Fibrosis Forum (EXP)

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  1. M

    Transitioning to and from hospital life and home life!

    Megan, May I ask how old you are? I CANNOT BELIEVE you have suffered from cardiac arrest? I am in the hospital now with my 13 year old son, who came in here with chest pain. This is a huge concern of mine, but they are saying it is NOT related to CF, and his heart is just reacting to being ill...
  2. M

    Transitioning to and from hospital life and home life!

    Megan, May I ask how old you are? I CANNOT BELIEVE you have suffered from cardiac arrest? I am in the hospital now with my 13 year old son, who came in here with chest pain. This is a huge concern of mine, but they are saying it is NOT related to CF, and his heart is just reacting to being ill...
  3. M

    13 year old boy in hospital with chest pain possible SVT

    thanks for responding Thanks for the info, his ox levels are ok, and you are right about the emergency x rays and pneumonia. We originally went to our local Er, I guess they have not seen the lungs of a cfer, I will remember this one in the future. Love your Wayne Gretzky quote!
  4. M

    13 year old boy in hospital with chest pain possible SVT

    thanks for responding Thanks for the info, his ox levels are ok, and you are right about the emergency x rays and pneumonia. We originally went to our local Er, I guess they have not seen the lungs of a cfer, I will remember this one in the future. Love your Wayne Gretzky quote!
  5. M

    13 year old boy in hospital with chest pain possible SVT

    thanks for responding Thanks for the info, his ox levels are ok, and you are right about the emergency x rays and pneumonia. We originally went to our local Er, I guess they have not seen the lungs of a cfer, I will remember this one in the future. Love your Wayne Gretzky quote!
  6. M

    13 year old boy in hospital with chest pain possible SVT

    Has anyone experienced heart issues that were misdiagnosed as pneumonia? Sam is in the hospital with fairly good PFTS 85%, but the original reason we went to the hospital was chest pain. His heartbeat was 200 bpm, 60/40 blood pressure and diabeties blood sugars over the top. Sam rarely complains...
  7. M

    13 year old boy in hospital with chest pain possible SVT

    Has anyone experienced heart issues that were misdiagnosed as pneumonia? Sam is in the hospital with fairly good PFTS 85%, but the original reason we went to the hospital was chest pain. His heartbeat was 200 bpm, 60/40 blood pressure and diabeties blood sugars over the top. Sam rarely complains...
  8. M

    13 year old boy in hospital with chest pain possible SVT

    Has anyone experienced heart issues that were misdiagnosed as pneumonia? <br />Sam is in the hospital with fairly good PFTS 85%, but the original reason we went to the hospital was chest pain. His heartbeat was 200 bpm, 60/40 blood pressure and diabeties blood sugars over the top. <br />Sam...
  9. M

    CF / Type1 diabetes challenge

    Sam in with double pneumonia Thank you all for the information, I would like it if sam would be the one to reach out to others his age with these complications, but he is shy. We tried the pump last year and it simply was too difficult for Sam to manage, we may try again however. w arrived at...
  10. M

    CF / Type1 diabetes challenge

    Sam in with double pneumonia Thank you all for the information, I would like it if sam would be the one to reach out to others his age with these complications, but he is shy. We tried the pump last year and it simply was too difficult for Sam to manage, we may try again however. w arrived at...
  11. M

    CF / Type1 diabetes challenge

    Sam in with double pneumonia Thank you all for the information, I would like it if sam would be the one to reach out to others his age with these complications, but he is shy. We tried the pump last year and it simply was too difficult for Sam to manage, we may try again however. <br />w...
  12. M

    School Absences

    Hi Tara, If you are still reviewing these, I would like to add another idea. My son went to middle school for 1/2 a year and we had to make a change. Although he had an IEP/504 plan in place, there were WAY too many children at his middle school here in Ca, and our son was lost. He was failing...
  13. M

    School Absences

    Hi Tara, If you are still reviewing these, I would like to add another idea. My son went to middle school for 1/2 a year and we had to make a change. Although he had an IEP/504 plan in place, there were WAY too many children at his middle school here in Ca, and our son was lost. He was failing...
  14. M

    School Absences

    Hi Tara, <br />If you are still reviewing these, I would like to add another idea. My son went to middle school for 1/2 a year and we had to make a change. Although he had an IEP/504 plan in place, there were WAY too many children at his middle school here in Ca, and our son was lost. He was...
  15. M

    THANKS ADAM

    Adam, THANK YOU SO MUCH for the special way you treat our son on the gaming system. What a great person you are and we are so thankful for you. Sam told us this morning that you call him " Buddy" and that is so endearing. You are our Christmas blessing this year. THANKS Adam!!!!
  16. M

    THANKS ADAM

    Adam, THANK YOU SO MUCH for the special way you treat our son on the gaming system. What a great person you are and we are so thankful for you. Sam told us this morning that you call him " Buddy" and that is so endearing. You are our Christmas blessing this year. THANKS Adam!!!!
  17. M

    THANKS ADAM

    Adam, <br /> THANK YOU SO MUCH for the special way you treat our son on the gaming system. <br />What a great person you are and we are so thankful for you. <br />Sam told us this morning that you call him " Buddy" and that is so endearing. <br />You are our Christmas blessing this year. THANKS...
  18. M

    CF / Type1 diabetes challenge

    I have a 13 year old son with Cf and type 1 diabetes, his blood sugars are always high, no matter how much insulin we add or how we manage the meals etc. Any suggestions? Sam just returned from a tune up, still has overly high blood sugars and complains often of lower back pain. He is not very...
  19. M

    CF / Type1 diabetes challenge

    I have a 13 year old son with Cf and type 1 diabetes, his blood sugars are always high, no matter how much insulin we add or how we manage the meals etc. Any suggestions? Sam just returned from a tune up, still has overly high blood sugars and complains often of lower back pain. He is not very...
  20. M

    CF / Type1 diabetes challenge

    I have a 13 year old son with Cf and type 1 diabetes, his blood sugars are always high, no matter how much insulin we add or how we manage the meals etc. Any suggestions? Sam just returned from a tune up, still has overly high blood sugars and complains often of lower back pain. He is not very...
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