Cystic Fibrosis Forum (EXP)

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  1. R

    Moving to Hawaii

    I have never been to Hawaii so I have no first hand information...however, during our last visit to our CF Center in San Antonio, my 14 year old daughter told her doctor that she planned to go to college in Hawaii. The CF doctor told her that there are no CF Centers in Hawaii and that she just...
  2. R

    Moving to Hawaii

    I have never been to Hawaii so I have no first hand information...however, during our last visit to our CF Center in San Antonio, my 14 year old daughter told her doctor that she planned to go to college in Hawaii. The CF doctor told her that there are no CF Centers in Hawaii and that she just...
  3. R

    Moving to Hawaii

    I have never been to Hawaii so I have no first hand information...however, during our last visit to our CF Center in San Antonio, my 14 year old daughter told her doctor that she planned to go to college in Hawaii. The CF doctor told her that there are no CF Centers in Hawaii and that she just...
  4. R

    kids with and without cf

    I have 3 children by birth and 2 by marriage. Of my biological children, 2 have CF.
  5. R

    kids with and without cf

    I have 3 children by birth and 2 by marriage. Of my biological children, 2 have CF.
  6. R

    kids with and without cf

    I have 3 children by birth and 2 by marriage. Of my biological children, 2 have CF.
  7. R

    kids with and without cf

    I have 3 children by birth and 2 by marriage. Of my biological children, 2 have CF.
  8. R

    kids with and without cf

    I have 3 children by birth and 2 by marriage. Of my biological children, 2 have CF.
  9. R

    Recent article regarding the gene that modifies the severity of CF

    Interesting. Thanks for posting the article. My daughters' doctor has told us that she is sure that my girls have a modifier of some type due to them both being DDF508 and having such mild lung disease but that there are tests or anything as of yet to verify that. It's a fascinating concept...
  10. R

    Recent article regarding the gene that modifies the severity of CF

    Interesting. Thanks for posting the article. My daughters' doctor has told us that she is sure that my girls have a modifier of some type due to them both being DDF508 and having such mild lung disease but that there are tests or anything as of yet to verify that. It's a fascinating concept...
  11. R

    Recent article regarding the gene that modifies the severity of CF

    Interesting. Thanks for posting the article. My daughters' doctor has told us that she is sure that my girls have a modifier of some type due to them both being DDF508 and having such mild lung disease but that there are tests or anything as of yet to verify that. It's a fascinating concept...
  12. R

    Recent article regarding the gene that modifies the severity of CF

    Interesting. Thanks for posting the article. My daughters' doctor has told us that she is sure that my girls have a modifier of some type due to them both being DDF508 and having such mild lung disease but that there are tests or anything as of yet to verify that. It's a fascinating concept...
  13. R

    Recent article regarding the gene that modifies the severity of CF

    Interesting. Thanks for posting the article. My daughters' doctor has told us that she is sure that my girls have a modifier of some type due to them both being DDF508 and having such mild lung disease but that there are tests or anything as of yet to verify that. It's a fascinating concept...
  14. R

    Discipline and the CF child

    I have 5 kids... 3 boys without CF and 2 girls with CF. My CF'ers are 14 & 10. I remember before I ever had kids there was a woman at the church I went to who had a daughter who was severely brain damaged due to lack of oxygen before birth. She couldn't talk, walk, eat on her own...
  15. R

    Discipline and the CF child

    I have 5 kids... 3 boys without CF and 2 girls with CF. My CF'ers are 14 & 10. I remember before I ever had kids there was a woman at the church I went to who had a daughter who was severely brain damaged due to lack of oxygen before birth. She couldn't talk, walk, eat on her own...
  16. R

    Discipline and the CF child

    I have 5 kids... 3 boys without CF and 2 girls with CF. My CF'ers are 14 & 10. I remember before I ever had kids there was a woman at the church I went to who had a daughter who was severely brain damaged due to lack of oxygen before birth. She couldn't talk, walk, eat on her own...
  17. R

    Discipline and the CF child

    I have 5 kids... 3 boys without CF and 2 girls with CF. My CF'ers are 14 & 10. I remember before I ever had kids there was a woman at the church I went to who had a daughter who was severely brain damaged due to lack of oxygen before birth. She couldn't talk, walk, eat on her own...
  18. R

    Discipline and the CF child

    I have 5 kids... 3 boys without CF and 2 girls with CF. My CF'ers are 14 & 10. <br /> <br />I remember before I ever had kids there was a woman at the church I went to who had a daughter who was severely brain damaged due to lack of oxygen before birth. She couldn't talk, walk, eat on her...
  19. R

    Chilren Special Health Care Services

    It is a state run program and every state is different. I have lived in Kentucky, Minnesota and Texas and have had the program in all three states and they were all different. In Minnesota the program has an annual cap of $15,000 per child. They will not pay anything over that. (At least that...
  20. R

    Chilren Special Health Care Services

    It is a state run program and every state is different. I have lived in Kentucky, Minnesota and Texas and have had the program in all three states and they were all different. In Minnesota the program has an annual cap of $15,000 per child. They will not pay anything over that. (At least that...
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