Cystic Fibrosis Forum (EXP)

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  1. R

    Chilren Special Health Care Services

    It is a state run program and every state is different. I have lived in Kentucky, Minnesota and Texas and have had the program in all three states and they were all different. In Minnesota the program has an annual cap of $15,000 per child. They will not pay anything over that. (At least that...
  2. R

    Chilren Special Health Care Services

    It is a state run program and every state is different. I have lived in Kentucky, Minnesota and Texas and have had the program in all three states and they were all different. In Minnesota the program has an annual cap of $15,000 per child. They will not pay anything over that. (At least that...
  3. R

    Chilren Special Health Care Services

    It is a state run program and every state is different. I have lived in Kentucky, Minnesota and Texas and have had the program in all three states and they were all different. In Minnesota the program has an annual cap of $15,000 per child. They will not pay anything over that. (At least that...
  4. R

    VX-809 for DDF508

    Oh, ok. Thanks for letting me know. I just got excited and wanted to share!
  5. R

    VX-809 for DDF508

    Oh, ok. Thanks for letting me know. I just got excited and wanted to share!
  6. R

    VX-809 for DDF508

    Oh, ok. Thanks for letting me know. I just got excited and wanted to share!
  7. R

    VX-809 for DDF508

    Oh, ok. Thanks for letting me know. I just got excited and wanted to share!
  8. R

    VX-809 for DDF508

    Oh, ok. Thanks for letting me know. I just got excited and wanted to share!
  9. R

    VX-809 for DDF508

    I didn't realize that it was not okay to discuss drugs that are in clinical trials. I thought it would be very encouraging news to people with CF... and I thought that was the point of a CF website. Should I have posted it somewhere else?
  10. R

    VX-809 for DDF508

    I didn't realize that it was not okay to discuss drugs that are in clinical trials. I thought it would be very encouraging news to people with CF... and I thought that was the point of a CF website. Should I have posted it somewhere else?
  11. R

    VX-809 for DDF508

    I didn't realize that it was not okay to discuss drugs that are in clinical trials. I thought it would be very encouraging news to people with CF... and I thought that was the point of a CF website. Should I have posted it somewhere else?
  12. R

    VX-809 for DDF508

    I didn't realize that it was not okay to discuss drugs that are in clinical trials. I thought it would be very encouraging news to people with CF... and I thought that was the point of a CF website. Should I have posted it somewhere else?
  13. R

    VX-809 for DDF508

    I didn't realize that it was not okay to discuss drugs that are in clinical trials. I thought it would be very encouraging news to people with CF... and I thought that was the point of a CF website. Should I have posted it somewhere else?
  14. R

    VX-809 for DDF508

    From what the doctor said to us, the upcoming study is going to be on people with DDF508... however, I found the following article that said that Phase 1 included people with only 1 DF508 mutation... You may want to ask your doctor about it. It's certainly worth checking into! <a...
  15. R

    VX-809 for DDF508

    From what the doctor said to us, the upcoming study is going to be on people with DDF508... however, I found the following article that said that Phase 1 included people with only 1 DF508 mutation... You may want to ask your doctor about it. It's certainly worth checking into! <a...
  16. R

    VX-809 for DDF508

    From what the doctor said to us, the upcoming study is going to be on people with DDF508... however, I found the following article that said that Phase 1 included people with only 1 DF508 mutation... You may want to ask your doctor about it. It's certainly worth checking into! <a...
  17. R

    VX-809 for DDF508

    From what the doctor said to us, the upcoming study is going to be on people with DDF508... however, I found the following article that said that Phase 1 included people with only 1 DF508 mutation... You may want to ask your doctor about it. It's certainly worth checking into! <a...
  18. R

    VX-809 for DDF508

    From what the doctor said to us, the upcoming study is going to be on people with DDF508... however, I found the following article that said that Phase 1 included people with only 1 DF508 mutation... You may want to ask your doctor about it. It's certainly worth checking into! <br /> <br /> <br...
  19. R

    VX-809 for DDF508

    I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...
  20. R

    VX-809 for DDF508

    I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...
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