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I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...

I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...

I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...

I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...

I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...

I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...

I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...

I was at the CF Center yesterday for a checkup with my daughters and our CF doc told us that they are going to be starting Phase 2 trials of the VX-809 drug specifically for people with Double Delta F508 this spring. She wants my 14 year old to participate. (the minimum age is 12 so my other...

Hi... I am originally from KY and my girls have gone to the Lexington clinic... My personal experience there was not so great. They didn't seem to want to involve the parents in the child's care very much and were not very open to my thoughts or questions... (that was many years ago so it may...

Hi... I am originally from KY and my girls have gone to the Lexington clinic... My personal experience there was not so great. They didn't seem to want to involve the parents in the child's care very much and were not very open to my thoughts or questions... (that was many years ago so it may...

Hi... I am originally from KY and my girls have gone to the Lexington clinic... My personal experience there was not so great. They didn't seem to want to involve the parents in the child's care very much and were not very open to my thoughts or questions... (that was many years ago so it may...

Hi... I am originally from KY and my girls have gone to the Lexington clinic... My personal experience there was not so great. They didn't seem to want to involve the parents in the child's care very much and were not very open to my thoughts or questions... (that was many years ago so it may...

Hi... I am originally from KY and my girls have gone to the Lexington clinic... My personal experience there was not so great. They didn't seem to want to involve the parents in the child's care very much and were not very open to my thoughts or questions... (that was many years ago so it may...

Hi... My girls go to Christus Santa Rosa in San Antonio. We love it. We live in Midland which is roughly a 5 1/2 hour drive from San Antonio but it is worth it. We had switched to Fort Worth (Cook Children's) for a while because it is a little bit closer but we ended up going back to San...

Hi... My girls go to Christus Santa Rosa in San Antonio. We love it. We live in Midland which is roughly a 5 1/2 hour drive from San Antonio but it is worth it. We had switched to Fort Worth (Cook Children's) for a while because it is a little bit closer but we ended up going back to San...

Hi... My girls go to Christus Santa Rosa in San Antonio. We love it. We live in Midland which is roughly a 5 1/2 hour drive from San Antonio but it is worth it. We had switched to Fort Worth (Cook Children's) for a while because it is a little bit closer but we ended up going back to San...

Hi... My girls go to Christus Santa Rosa in San Antonio. We love it. We live in Midland which is roughly a 5 1/2 hour drive from San Antonio but it is worth it. We had switched to Fort Worth (Cook Children's) for a while because it is a little bit closer but we ended up going back to San...

Hi... My girls go to Christus Santa Rosa in San Antonio. We love it. We live in Midland which is roughly a 5 1/2 hour drive from San Antonio but it is worth it. We had switched to Fort Worth (Cook Children's) for a while because it is a little bit closer but we ended up going back to San...

I looked for a website but have only been able to find a provider website that doesn't give very much info. The program is the Medically Dependent Children's Program... you can google that and see if you can find anything. The thing is that there is a very long (several years) waiting list for...

I looked for a website but have only been able to find a provider website that doesn't give very much info. The program is the Medically Dependent Children's Program... you can google that and see if you can find anything. The thing is that there is a very long (several years) waiting list for...