Cystic Fibrosis Forum (EXP)

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  1. L

    School starts~handling lunch issues

    Hi Paula I have a daughter who will start 1st grade this sept. also... I wasnt even thinking about the "no snack situation", I remember my other 2 daughters had snack in the 1st grade, but I will have to look into it about Lara. (lara eats every hour on the hour too!) I would definately...
  2. L

    Welcome Ambry Genetics

    Hi Steve, My 5 year old daughter was just diagnosed with A-typical CF (quest entire gene sequence, my ins. did not deal with Ambry) I know you work for Ambry and was wondering if I could pick your brain a little? (you are SO great with your answers!) Ive been to the cf center already, but did...
  3. L

    Question

    lilismom, Hi and thx for the welcome, my daughter will be 6 this september. This is a great site, and I have to say it has explained alot to me. Your daughter is 4 and a half?
  4. L

    Question

    lilismom, Hi and thx for the welcome, my daughter will be 6 this september. This is a great site, and I have to say it has explained alot to me. Your daughter is 4 and a half?
  5. L

    Question

    lilismom, Hi and thx for the welcome, my daughter will be 6 this september. This is a great site, and I have to say it has explained alot to me. Your daughter is 4 and a half?
  6. L

    Question

    lilismom, Hi and thx for the welcome, my daughter will be 6 this september. This is a great site, and I have to say it has explained alot to me. Your daughter is 4 and a half?
  7. L

    Question

    lilismom, Hi and thx for the welcome, my daughter will be 6 this september. This is a great site, and I have to say it has explained alot to me. Your daughter is 4 and a half?
  8. L

    Laras results

    Hi Everyone Thank you all for your responses and virtual hugs, All of you guys are so knowledgeable and helpful, and I have to say that this site is helping me get through this. I have been numb for the last 3 days, shocked, but not shocked, knew she had it in my gut, but I guess I was still...
  9. L

    Laras results

    Hi Everyone Thank you all for your responses and virtual hugs, All of you guys are so knowledgeable and helpful, and I have to say that this site is helping me get through this. I have been numb for the last 3 days, shocked, but not shocked, knew she had it in my gut, but I guess I was still...
  10. L

    Laras results

    Hi Everyone Thank you all for your responses and virtual hugs, All of you guys are so knowledgeable and helpful, and I have to say that this site is helping me get through this. I have been numb for the last 3 days, shocked, but not shocked, knew she had it in my gut, but I guess I was still...
  11. L

    Laras results

    Hi Everyone Thank you all for your responses and virtual hugs, All of you guys are so knowledgeable and helpful, and I have to say that this site is helping me get through this. I have been numb for the last 3 days, shocked, but not shocked, knew she had it in my gut, but I guess I was still...
  12. L

    Laras results

    Hi Everyone Thank you all for your responses and virtual hugs, All of you guys are so knowledgeable and helpful, and I have to say that this site is helping me get through this. I have been numb for the last 3 days, shocked, but not shocked, knew she had it in my gut, but I guess I was still...
  13. L

    Question

    You dont know how glad I am I found this site; my daughter was diagnosed yesterday, and I cant even explain how everybodys knowledge and helpful ways, has kinda helped me get through this, it was like I knew what to expect. Lightnlife your explanation was great and simply put, and is helping...
  14. L

    Question

    You dont know how glad I am I found this site; my daughter was diagnosed yesterday, and I cant even explain how everybodys knowledge and helpful ways, has kinda helped me get through this, it was like I knew what to expect. Lightnlife your explanation was great and simply put, and is helping...
  15. L

    Question

    You dont know how glad I am I found this site; my daughter was diagnosed yesterday, and I cant even explain how everybodys knowledge and helpful ways, has kinda helped me get through this, it was like I knew what to expect. Lightnlife your explanation was great and simply put, and is helping...
  16. L

    Question

    You dont know how glad I am I found this site; my daughter was diagnosed yesterday, and I cant even explain how everybodys knowledge and helpful ways, has kinda helped me get through this, it was like I knew what to expect. Lightnlife your explanation was great and simply put, and is helping...
  17. L

    Question

    You dont know how glad I am I found this site; my daughter was diagnosed yesterday, and I cant even explain how everybodys knowledge and helpful ways, has kinda helped me get through this, it was like I knew what to expect. Lightnlife your explanation was great and simply put, and is helping...
  18. L

    Laras results

    Hi Everyone I got the results of Laras genetic testing today.Her Dr. says she has Atypical CF, her 1 mutation is, she said, very rare R75Q cftr variant; I cant remember the other one, which she said is common, I have an appt with the CF team on Thurs.8/15. She is going to do tests to see if...
  19. L

    Laras results

    Hi Everyone I got the results of Laras genetic testing today.Her Dr. says she has Atypical CF, her 1 mutation is, she said, very rare R75Q cftr variant; I cant remember the other one, which she said is common, I have an appt with the CF team on Thurs.8/15. She is going to do tests to see if...
  20. L

    Laras results

    Hi Everyone I got the results of Laras genetic testing today.Her Dr. says she has Atypical CF, her 1 mutation is, she said, very rare R75Q cftr variant; I cant remember the other one, which she said is common, I have an appt with the CF team on Thurs.8/15. She is going to do tests to see if...
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