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Hi Everyone
I got the results of Laras genetic testing today.Her Dr. says she has Atypical CF, her 1 mutation is, she said, very rare R75Q cftr variant; I cant remember the other one, which she said is common, I have an appt with the CF team on Thurs.8/15. She is going to do tests to see if...
Hi Everyone
I got the results of Laras genetic testing today.Her Dr. says she has Atypical CF, her 1 mutation is, she said, very rare R75Q cftr variant; I cant remember the other one, which she said is common, I have an appt with the CF team on Thurs.8/15. She is going to do tests to see if...
Hi Everyone,
Spoke to Laras pulmos nurse today and she said no word yet, she called Quest and according to them its 6 weeks today (they must not count weekends) sooo... the waiting continues.
Lara has been getting alot of headaches and bellyaches lately but so far so good with her breathing...
Hi Everyone,
Spoke to Laras pulmos nurse today and she said no word yet, she called Quest and according to them its 6 weeks today (they must not count weekends) sooo... the waiting continues.
Lara has been getting alot of headaches and bellyaches lately but so far so good with her breathing...
Hi Everyone,
Spoke to Laras pulmos nurse today and she said no word yet, she called Quest and according to them its 6 weeks today (they must not count weekends) sooo... the waiting continues.
Lara has been getting alot of headaches and bellyaches lately but so far so good with her breathing...
Hi Everyone,
Spoke to Laras pulmos nurse today and she said no word yet, she called Quest and according to them its 6 weeks today (they must not count weekends) sooo... the waiting continues.
Lara has been getting alot of headaches and bellyaches lately but so far so good with her breathing...
Hi Everyone,
Spoke to Laras pulmos nurse today and she said no word yet, she called Quest and according to them its 6 weeks today (they must not count weekends) sooo... the waiting continues.
Lara has been getting alot of headaches and bellyaches lately but so far so good with her breathing...
Hi All
I took all of your advice and called Quest today, they told me the test takes 42 days to complete.. today is the 47th. The woman on the phone was somewhat sympathetic and told me she would research the holdup. She took my number and havent heard from her since, so I will keep u guys...
Hi All
I took all of your advice and called Quest today, they told me the test takes 42 days to complete.. today is the 47th. The woman on the phone was somewhat sympathetic and told me she would research the holdup. She took my number and havent heard from her since, so I will keep u guys...
Hi All
I took all of your advice and called Quest today, they told me the test takes 42 days to complete.. today is the 47th. The woman on the phone was somewhat sympathetic and told me she would research the holdup. She took my number and havent heard from her since, so I will keep u guys...
Hi All
I took all of your advice and called Quest today, they told me the test takes 42 days to complete.. today is the 47th. The woman on the phone was somewhat sympathetic and told me she would research the holdup. She took my number and havent heard from her since, so I will keep u guys...
Hi All
I took all of your advice and called Quest today, they told me the test takes 42 days to complete.. today is the 47th. The woman on the phone was somewhat sympathetic and told me she would research the holdup. She took my number and havent heard from her since, so I will keep u guys...
Hi Everyone,
I have been lurking here for weeks, reading the posts and news. The last time I posted was ??? But I cannot beleive it has been 6 1/2 weeks since my daughters blood was drawn for genetic testing (Quest complete) and I still have no results!! What the F**K!!??? This is getting...
Hi Everyone,
I have been lurking here for weeks, reading the posts and news. The last time I posted was ??? But I cannot beleive it has been 6 1/2 weeks since my daughters blood was drawn for genetic testing (Quest complete) and I still have no results!! What the F**K!!??? This is getting...
Hi Everyone,
I have been lurking here for weeks, reading the posts and news. The last time I posted was ??? But I cannot beleive it has been 6 1/2 weeks since my daughters blood was drawn for genetic testing (Quest complete) and I still have no results!! What the F**K!!??? This is getting...
Hi Everyone,
I have been lurking here for weeks, reading the posts and news. The last time I posted was ??? But I cannot beleive it has been 6 1/2 weeks since my daughters blood was drawn for genetic testing (Quest complete) and I still have no results!! What the F**K!!??? This is getting...
Hi Everyone,
I have been lurking here for weeks, reading the posts and news. The last time I posted was ??? But I cannot beleive it has been 6 1/2 weeks since my daughters blood was drawn for genetic testing (Quest complete) and I still have no results!! What the F**K!!??? This is getting...
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