Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. M

    Cleaning Nebs and Spacers in Dishwasher...

    I have recently purchased a countertop dishwasher that has an Intensive wash cycle that heats up to 158 degrees for 35-40 minutes. I haven't gotten it yet, but I can't wait! It will be so convenient for us to just put them in there and push a button to have the clean and sterile. So my...
  2. M

    Cleaning Nebs and Spacers in Dishwasher...

    I have recently purchased a countertop dishwasher that has an Intensive wash cycle that heats up to 158 degrees for 35-40 minutes. <br /> <br />I haven't gotten it yet, but I can't wait! It will be so convenient for us to just put them in there and push a button to have the clean and sterile...
  3. M

    Daughter cultured Pantoea agglomerans...

    My daughter had a culture done in September that showed light growth of Enterobacter and Staph. She had no symptoms though so we did not treat it. Now in November she is showing a heavy growth of Enterobacter and a light growth of Staph. And she has had a cough for a month. At first she had a...
  4. M

    Daughter cultured Pantoea agglomerans...

    My daughter had a culture done in September that showed light growth of Enterobacter and Staph. She had no symptoms though so we did not treat it. Now in November she is showing a heavy growth of Enterobacter and a light growth of Staph. And she has had a cough for a month. At first she had a...
  5. M

    Daughter cultured Pantoea agglomerans...

    My daughter had a culture done in September that showed light growth of Enterobacter and Staph. She had no symptoms though so we did not treat it. <br /> <br />Now in November she is showing a heavy growth of Enterobacter and a light growth of Staph. And she has had a cough for a month. At...
  6. M

    Soy Formula Anyone?

    I was told that soy is hard for people with cf to digest. I used the lactose free formula made by Natures One. It is the advertisement at the top of this page. I have used it since my daughter was five months old. First we used the baby formula and now we use the PediaSmart. They also offer a...
  7. M

    Soy Formula Anyone?

    I was told that soy is hard for people with cf to digest. I used the lactose free formula made by Natures One. It is the advertisement at the top of this page. I have used it since my daughter was five months old. First we used the baby formula and now we use the PediaSmart. They also offer a...
  8. M

    Soy Formula Anyone?

    I was told that soy is hard for people with cf to digest. I used the lactose free formula made by Natures One. It is the advertisement at the top of this page. <br />I have used it since my daughter was five months old. First we used the baby formula and now we use the PediaSmart. They also...
  9. M

    Pancrecarb

    I totally feel your frustration! I have tried to contact that lady from the FDA and even the sales guy from Pacreacarb. Neither one will call me back. I just hope that one of the other companies will come up with some kind of enzyme that can go through a tube.
  10. M

    Pancrecarb

    I totally feel your frustration! I have tried to contact that lady from the FDA and even the sales guy from Pacreacarb. Neither one will call me back. I just hope that one of the other companies will come up with some kind of enzyme that can go through a tube.
  11. M

    Pancrecarb

    I totally feel your frustration! I have tried to contact that lady from the FDA and even the sales guy from Pacreacarb. Neither one will call me back. I just hope that one of the other companies will come up with some kind of enzyme that can go through a tube.
  12. M

    Feeding tube/coughing issues. Anyone else experience any of this?

    This may be a silly question, but I didn't see where you had mentioned it. Is your daughter on a reflux med?
  13. M

    Feeding tube/coughing issues. Anyone else experience any of this?

    This may be a silly question, but I didn't see where you had mentioned it. Is your daughter on a reflux med?
  14. M

    Feeding tube/coughing issues. Anyone else experience any of this?

    This may be a silly question, but I didn't see where you had mentioned it. Is your daughter on a reflux med?
  15. M

    Single Parents of CF'ers???

    I just wanted to say how much I respect the single parents. CF is such a challenge, one that should not be dealt with alone. Stay Strong.
  16. M

    Single Parents of CF'ers???

    I just wanted to say how much I respect the single parents. CF is such a challenge, one that should not be dealt with alone. Stay Strong.
  17. M

    Single Parents of CF'ers???

    I just wanted to say how much I respect the single parents. CF is such a challenge, one that should not be dealt with alone. Stay Strong.
  18. M

    Feeding tube/coughing issues. Anyone else experience any of this?

    Yeah I would have to agree that it sounds like reflux. What volume per hour is your daughter doing? Have you ever tried bolus feeds throughout the day? This is what I do with my daughter. You could feed her 5 or six meals a day, let her eat what she wants first, do enzymes, then bolus feed...
  19. M

    Feeding tube/coughing issues. Anyone else experience any of this?

    Yeah I would have to agree that it sounds like reflux. What volume per hour is your daughter doing? Have you ever tried bolus feeds throughout the day? This is what I do with my daughter. You could feed her 5 or six meals a day, let her eat what she wants first, do enzymes, then bolus feed...
  20. M

    Feeding tube/coughing issues. Anyone else experience any of this?

    Yeah I would have to agree that it sounds like reflux. <br /> <br />What volume per hour is your daughter doing? <br />Have you ever tried bolus feeds throughout the day? This is what I do with my daughter. <br />You could feed her 5 or six meals a day, let her eat what she wants first, do...
Top