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I dread this myself. My daughter is almost 21 months and I wonder when she will start noticing. She is such a smart girl it won't be long. I just hope I am prepared to answer all her questions.

I dread this myself. My daughter is almost 21 months and I wonder when she will start noticing. She is such a smart girl it won't be long. I just hope I am prepared to answer all her questions.

I dread this myself. My daughter is almost 21 months and I wonder when she will start noticing. She is such a smart girl it won't be long. I just hope I am prepared to answer all her questions.

Happy Birthday!! Today is my cousin's birthday, he is 21.

Happy Birthday!! Today is my cousin's birthday, he is 21.

Happy Birthday!! Today is my cousin's birthday, he is 21.

My daughter doesn't have a PEG tube, but she she does have a mickey button. You can look it up online to see the difference. She has had this since she was about a month old. It has been a great thing for her. The surgery recovery was fairly mild. She didn't seem to have any extra issues with...

My daughter doesn't have a PEG tube, but she she does have a mickey button. You can look it up online to see the difference. She has had this since she was about a month old. It has been a great thing for her. The surgery recovery was fairly mild. She didn't seem to have any extra issues with...

My daughter doesn't have a PEG tube, but she she does have a mickey button. You can look it up online to see the difference. She has had this since she was about a month old. It has been a great thing for her. <br /> <br />The surgery recovery was fairly mild. She didn't seem to have any extra...

My daughter has thrown up off and on her whole life. I finally gave in and giver her Prevacid, her reflux med. The throwing up has stopped and she is eating so much better. The pancreas of a person with CF as you know is clogged with mucus. This prevents not only the enzymes from getting out...

My daughter has thrown up off and on her whole life. I finally gave in and giver her Prevacid, her reflux med. The throwing up has stopped and she is eating so much better. The pancreas of a person with CF as you know is clogged with mucus. This prevents not only the enzymes from getting out...

My daughter has thrown up off and on her whole life. I finally gave in and giver her Prevacid, her reflux med. The throwing up has stopped and she is eating so much better. <br /> <br />The pancreas of a person with CF as you know is clogged with mucus. This prevents not only the enzymes from...

My daughter has cultured it several times before, but only caused her problems once. She had an increasing cough so we treated it with two weeks of Augmentin. It cleared it right up. I never thought though of the reflux potenially causing the ecoli growth, very interesting. I thought it might...

My daughter has cultured it several times before, but only caused her problems once. She had an increasing cough so we treated it with two weeks of Augmentin. It cleared it right up. I never thought though of the reflux potenially causing the ecoli growth, very interesting. I thought it might...

My daughter has cultured it several times before, but only caused her problems once. She had an increasing cough so we treated it with two weeks of Augmentin. It cleared it right up. <br /> <br />I never thought though of the reflux potenially causing the ecoli growth, very interesting. I...

Did you do the Ambry genetic testing? Are you saying that she has only one mutation DDf508, making her only a carrier? My daughter was only 2 weeks old when they performed her sweat test. They did two and both of them where abnormally high and this is what determined she had CF. The genetic...

Did you do the Ambry genetic testing? Are you saying that she has only one mutation DDf508, making her only a carrier? My daughter was only 2 weeks old when they performed her sweat test. They did two and both of them where abnormally high and this is what determined she had CF. The genetic...

Did you do the Ambry genetic testing? <br />Are you saying that she has only one mutation DDf508, making her only a carrier? <br /> <br />My daughter was only 2 weeks old when they performed her sweat test. They did two and both of them where abnormally high and this is what determined she had...

I was so wondering about this too. Mariah had a pretty bad virus that got her dehydrated enough to need fluids at the hospital. She wasn't able to eat for almost four days. After we got home, her fingers and toes peeled and I wondered if it may be CF related or something else.

I was so wondering about this too. Mariah had a pretty bad virus that got her dehydrated enough to need fluids at the hospital. She wasn't able to eat for almost four days. After we got home, her fingers and toes peeled and I wondered if it may be CF related or something else.