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I was so wondering about this too. Mariah had a pretty bad virus that got her dehydrated enough to need fluids at the hospital. She wasn't able to eat for almost four days. After we got home, her fingers and toes peeled and I wondered if it may be CF related or something else.

I second what she said. Mutations mean nothing when it comes to severity. It is true that Df508 is more common, but not necessarily more severe. Compliance is key to fighting this disease, but sometimes even this doesn't hold true. Like she said enjoy every minute and take one day at a time...

I second what she said. Mutations mean nothing when it comes to severity. It is true that Df508 is more common, but not necessarily more severe. Compliance is key to fighting this disease, but sometimes even this doesn't hold true. Like she said enjoy every minute and take one day at a time...

I second what she said. Mutations mean nothing when it comes to severity. It is true that Df508 is more common, but not necessarily more severe. Compliance is key to fighting this disease, but sometimes even this doesn't hold true. Like she said enjoy every minute and take one day at a time...

What state do you live in? We live in Arkansas and my daughter is on SSI and we get the check and the medicaid. However there are two months of the year that my husband gets paid twice so they cut off both the check and the medicaid. On those months, we apply for TEFRA and have always been...

What state do you live in? We live in Arkansas and my daughter is on SSI and we get the check and the medicaid. However there are two months of the year that my husband gets paid twice so they cut off both the check and the medicaid. On those months, we apply for TEFRA and have always been...

What state do you live in? We live in Arkansas and my daughter is on SSI and we get the check and the medicaid. However there are two months of the year that my husband gets paid twice so they cut off both the check and the medicaid. <br />On those months, we apply for TEFRA and have always...

Ok so I hate to contest this because I would love for it to work too. My daughter has a 14French Mickey Button and I mixed the Zen Pep with mayonnaise and tried to push it through one of Mariah's old mickey buttons. Unfortunately it did not work. The Zen Pep beads are huge compared to Pancrecarb...

Ok so I hate to contest this because I would love for it to work too. My daughter has a 14French Mickey Button and I mixed the Zen Pep with mayonnaise and tried to push it through one of Mariah's old mickey buttons. Unfortunately it did not work. The Zen Pep beads are huge compared to Pancrecarb...

Ok so I hate to contest this because I would love for it to work too. My daughter has a 14French Mickey Button and I mixed the Zen Pep with mayonnaise and tried to push it through one of Mariah's old mickey buttons. Unfortunately it did not work. The Zen Pep beads are huge compared to Pancrecarb...

All I can say to you is that God has a plan for everyone. I have no idea how you feel, but as a mother of a child with cf, it makes me so upset to think about my daughter needing a transplant. I just hope they find your perfect lungs and that you can continue on with your beautiful life.

All I can say to you is that God has a plan for everyone. I have no idea how you feel, but as a mother of a child with cf, it makes me so upset to think about my daughter needing a transplant. I just hope they find your perfect lungs and that you can continue on with your beautiful life.

All I can say to you is that God has a plan for everyone. I have no idea how you feel, but as a mother of a child with cf, it makes me so upset to think about my daughter needing a transplant. I just hope they find your perfect lungs and that you can continue on with your beautiful life.

I have left this Beth Fritz two voicemails and she will not answer or call me back. It is really starting to frustrate me.

I have left this Beth Fritz two voicemails and she will not answer or call me back. It is really starting to frustrate me.

I have left this Beth Fritz two voicemails and she will not answer or call me back. It is really starting to frustrate me.

I haven't ever seen these before but they look great. They would be perfect when you are on the go.

I haven't ever seen these before but they look great. They would be perfect when you are on the go.

I haven't ever seen these before but they look great. They would be perfect when you are on the go.

My daughter had an adhesion at 3 months old and completely stopped pooping and her stomach grew like an inch an hour. It all happened so fast. I am glad to hear you are pooping, and hoping your pain will go away.