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I was babysitting my 6 month old nephew a few days ago and my son was playing with him on the floor. He loves his baby cousin and started to massage his back and then he started to do CPT on the baby. I told him that his cousin doesn't need CPT because he does not have CF. He got pretty upset...

You shouldn't have any problem with a backyard pool as long as it is well maintained. The filter unit needs to be cleaned at least twice a year, and the chemicals need to be balanced all the time. I always test the water after a heavy rain or after a bunch of people swam in it. I won't let my...

Go for it! My son swims every day in our backyard pool and he loves it. We also take him to the local waterparks and he's never had a problem. The benefits he gets from going out and having fun in the water far outweigh the potential of him getting sick. I don't worry too much about the...

my son went to the CF clinic yesterday as well. He goes every three months and they always swab his throat or have him spit mucus into a cup. I think it should be routine for every CF center.

my son would do the same when he was a baby. It scared me to death. He did it mainly at night, he would start to cough then cry and the combination would choke him. Every time he gasped for air he would inhale more mucus and he'd turn blue. A few good whacks and a bulb suction were the only...

my sons fingers are clubbed. The tips are big and the nail curves downward. I have slight clubbing when I am having a flare-up of my Crohn's. People don't comment on his nails--but he obsseses over them. He will spend thirty minutes looking at them and trying to pull them off, and he is only...

I designed a bracelet for CF. Mine has 65 red beads "65 Roses" and crystals. You can see it at DFWbeads.com, click on the CF jewelry box. My site needs some serious updating!! I also made a smaller one with blue swarovski crystals and a "live" charm. I need to add the blue one to my site, I...

I HATE Prednisone!!!! I took high doses for years. My son is the one with CF, I have Crohn's disease, a digestive disease. I recently had a flare-up and steroids were brought up. I had horrible side effects in the past and refused. However, there is a new steroid called Budesonide. It is...

We had one, and loved it, but when we moved we had to leave it behind. Our new backyard has a pool but no space for a trampoline or even a swing set.

my son is turning six on June 26 and I'm gonna cry like a baby! For some reason, when he turned three it just seemed like such a huge a milestone. Odd number birthdays always felt "bigger". When Harrison turned five and went to kindergarten, I stayed home, closed the blinds, watched Lifetime...

She should definitly get tested. Knowing is always better than not knowing. My niece is 12 and I suspect she has it (constant respiratory problems, underweight, stinky poop as an infant, etc...) Her mom refuses to get her tested, I've brought it up several times and she just blows me off. I...

That is terrible, I will definitly pray for the family and for him. He has to feel completly betrayed by his superiors. My brother was in the Navy several years ago, it was his life and he loved it. He was stationed in San Francisco and just returned from his "Westpac" on a nuclear sub. I'm...

Terrible Starbucks habit My son was in the hospital for two weeks in Feb. for a tune-up. Every day, while he was in the playroom, I would sneak off and get a newspaper and a big ass frappuchino. They have a Starbucks in the hospital!!!! It was an escape from the boring hospital room and the...

my son snored like a freight train. He did have polyps and so he had surgery to remove them, as well as his tonsils, and adenoids.

Quote "What a Relief I used to get real upset when my pregnant friends would say "I don't care if it's a boy or girl, as long as it is healthy". I was jealous and frustruated, but deep down I was relieved for them. My sister-in-law just had a beautiful and healthy little girl, I love her to...

you have every right to be pissed at your bitchy, free-loading, inconsiderate, selfish sister. You let her in your house and she has completly taken advantage of you regardless of your recent health problems, that is SICK!! I have three brothers and I know I antagonized them to hit me and...

I am so sorry about your girl, that must have and I'm sure still is gut-wrenching and horrible. Crohn's is not fun and I have a huge amount of guilt when I am not well enough to give my son the attention he deserves.

My son also goes the clinic at Children's in Dallas. We love it, but it is the only one we have taken him to so I can't compare. I have always got a call back the same day, and they certainly have never deferred advice to some other clinic in the hospital. Nothing is more insulting and...

I'm sorry I haven't forwarded my story or photos yet, but I will as soon as can access the photos. They are on my husbands computer. I think what you are doing is great and I am a huge supporter of breastfeeding.

Wow!!! Thanks for all the advice, it is empowering to know that I can fight back. My husband and I talked about our options last night and we decided that I am going to stay home. I was only working part-time and our health insurance is through my husbands work so it shouldn't hurt too much...