Cystic Fibrosis Forum (EXP)

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  1. C

    I lost my job

    I got fired yesterday and I am pretty pissed! My son was in the hospital for two weeks in Feb. for a tune-up. He is doing great now but still has bad days where I need to stay home and give him extra treatments, etc... I have Crohn's disease. which is a digestive disease causing ulcerations...
  2. C

    CF Breastfeeding Stories

    I breastfed my son for his first year, he's almost six now. I am so glad I did and I know that it did wonders for his immune system. He was not diagnosed until he was 18 months old and had stopped nursing. He did have a very difficult time gaining weight and I thought it was my fault. At his...
  3. C

    Dirty little secret

    I saw it on 20/20 the other night too!!! Wonderful idea
  4. C

    Dirty little secret

    I saw it on 20/20 the other night too!!! Wonderful idea
  5. C

    The whine thread.

    Mine is stupid but I am still annoyed. I went to my mom's house yesterday and she was sitting on the couch and let out a big sigh...."ohh, I have to change the lightbulb in the kitchen and I just hate doing it". She has these big vaulted ceilings and changing the bulbs is a big fiasco. I told...
  6. C

    The whine thread.

    Mine is stupid but I am still annoyed. I went to my mom's house yesterday and she was sitting on the couch and let out a big sigh...."ohh, I have to change the lightbulb in the kitchen and I just hate doing it". She has these big vaulted ceilings and changing the bulbs is a big fiasco. I told...
  7. C

    Hypertonic Saline and young children

    He's doing great!! However, he has been the biggest brat since we got home. He got spoiled by everyone while he was in the hospital and now expects to be treated that way at home. He's making me crazy, but at least he feels good!
  8. C

    Hypertonic Saline and young children

    He's doing great!! However, he has been the biggest brat since we got home. He got spoiled by everyone while he was in the hospital and now expects to be treated that way at home. He's making me crazy, but at least he feels good!
  9. C

    ANYONE IN TEXAS?!?!?!?

    I'm from Dallas, Yeehaw!
  10. C

    ANYONE IN TEXAS?!?!?!?

    I'm from Dallas, Yeehaw!
  11. C

    Hypertonic Saline and young children

    my son just got out of the hospital for a tune up and he tried hypertonic saline for the first time. He had no problem with it at all. The RT was wonderful and sat with him during the whole treatment, he did the vest at the same time. The RT did say that for some kids it will irritate the...
  12. C

    Hypertonic Saline and young children

    my son just got out of the hospital for a tune up and he tried hypertonic saline for the first time. He had no problem with it at all. The RT was wonderful and sat with him during the whole treatment, he did the vest at the same time. The RT did say that for some kids it will irritate the...
  13. C

    Mild/Moderate/Severe

    I get frustruated with my mom and some other family members when they try to downplay the severity of my son's CF. He is doing great right now but I know it will not be like this forever. For instance, I was very upset and depressed when Allan died last month and it was a big reality slap in...
  14. C

    Sharing My Pictures! Haha :)

    show me too
  15. C

    A big milestone for me!!

    I'm doing the running man dance just for you!
  16. C

    Anyone want to Vent... or just talk about CF?

    Hey Mike, I am the mom of a 5 year old with CF. He's doing pretty good right now and only spent one night in the hospital following tonsil, adenoid, and polyp removal. I was very devastated when he was diagnosed and can only imagine how your parents felt in 1978 when the life expectancy was...
  17. C

    When/how was your child diagnosed?

    My son was diagnosed at 18months. He was in the very bottom percentile for weight despite eating all the time. He could fill a diaper like you wouldn't believe, his nickname was "The Heinous Anus". He would cough till he vomited and had two mild cases of pneumonia. He has the double df508...
  18. C

    Update on Ashton

    What?!
  19. C

    Friends/Family not taking childs CF seriously!!!

    I worked as a teacher in my son's preschool and would occasionally miss days because he was sick. My boss was VERY understanding but some of my co-workers were not. I walked in one day, after missing a few days, and walked by one of the classrooms and heard one of the other teachers slamming...
  20. C

    New stepmom needs help with Eating Decisions

    My son with CF is five and I feel your pain. First of all, I seriously doubt the nutritionist said that to his mother. I would strongly recommend calling the CF clinic, with your husband, and setting up an appointment for the two of you to talk with the entire CF team. You will learn a ton...
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