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I don't have CF either, but my son does. I do have Crohn's disease which is a disease of the digestive system. It sounds like you need to see a gastroenterologist; you do not need to suffer any longer. As far as a colonoscopy goes it's really not that bad. The worst part for me is the prep...

Ughh, the same thing happened to me when I tried to donate blood. I don't have CF but I do have Crohn's and they gave me the same reason "they didn't want to deplete my supply". My veins are paper-thin and hard to get to so I probably would'nt be able to give anyway, but I felt so rejected.

Blythe, I live here in Richardson and my son sees Dr. Prestidge at Children's. I started making jewelry as a "stress reliever" and even designed a CF 65 roses bracelet. I love bead making! it has been theraputic and has helped me use my talents to raise money for CF. Who does your daughter...

My son is five and I was wondering when you think he should ask for wish? I want him to be old enough to really appreciate his wish.

I had to laugh about those stupid ball pits at fastfood restruants and green-nosed little kids!!! They are nasty!

Hello, my son ruptured his eardrum a few days ago and I was wondering if any other CFers experienced this. He felt sluggish all day and was real whiny at bedtime (he's five) he woke up around two in the morning with a high fever and stomach ache. He said his hear hurt and was in a lot of pain...

"Now, are you trying to tell me that what Winace is in anyway encouraging? In fact, has he ever encouraged anyone with anything, besides hoping that it all ends quickly?" That's Bull****! It is often hard to read some his posts about the reality of CF and they do tend to be depressing, but he...

RE:Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death. I am absolutly sickened by this. I know there is a lawyer with CF that several people have mentioned on this site before. She does a lot of CF legal issues and I think you should call her. I don't...

If you've spent so much "time" reading all the posts on this forum then why are you still anonymous. I believe in God and my son does as well. He's asked me the same question as to why he has CF. I would never think to say because other kids are weak--that is sick and ignorant of you. I am...

When I was younger I had to drop a nasogastric tube down my nose every night and would have to tape it to my face so it wouldn't come out. The skin on your face is sensitive and so I HAD to find some good tape. I used Tegaderm cut into strips and that seemed to do well. I used the little...

My son has never had a brown one either!!!

I purchased an ozone purifier when my son was about 10 months, before he was diagnosed. I could definitly see it working for my allergies and I was glad I bought it. However, soon after my son started having breathing problems. It started out as wheezing and then coughing and after a few...

My husband a varieocele in one of his testicles. It is an enlarged vein that can lead to swelling, pain, and low sperm count. He had it since birth but wasn't diagnosed till he joined the Navy, and was medically discharged for it. We had no problem getting pregnant because it only involved...

Amazing!!! He sounds like such a little fighter. Every single second is a blessing and I am so happy you were able to take him home. Hang in there and keep us posted!

My son is five and was diagnosed at 18 months. Consistency does play a role in treating CF, especially when it comes to breathing treatments. It helps the parent and child to have a set routine, this has been hard for me because I'm not time-oriented at all. As far as emotions go, your...

Kybert, I don't have CF but I do have Crohn's and Prednisone is my number one deal breaker. I've had numerous central lines, surgeries, colonoscopies, tube feeding, etc... but I will never go on steroids again!!! It was so much worse than just the outwardly side effects like chubby cheeks. It...

My son loves ketchup. He will eat it straight out of the bottle and uses it to take his enzymes with if we are out and I forgot to bring applesauce. Just yesterday he went in to the fridge and grabbed the lemon juice to "try" I warned him it was super sour, but he drank it anyway and made the...

Hey Spicyone, my son also goes to the CF clinic at children's. We love it! He usually sees Dr. Prestidge (he's the most amazing doctor on the planet!). My son has a crush on Daisy.

That's terrible. I woke up during a colonscopy and during an endoscopy. It is very traumatic to be completely helpless and unable to communicate. The doctors always said I wouldn't remember anything when I woke up, and were shocked when I could repeat the conversations they had while I was...

I am so sorry Jen. I have been following your situation since you first posted several months ago. I have seen you go from being terrified about Andrew's diagnosis, eager to learn more about CF, offering support to other mothers in this situation, angry about not being able to deliver where you...