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I was on 60mg every day (I was taking it for Crohn's not CF) and within the first two weeks I was beginning to get stretch marks. By the 4th week I was at my highest "steroid weight", not to mention all of the other nasty side-effects. What is the typical dose given to CF patients?

Yes, prednisone will make you feel very bloated. You retain much more water than usual and it can cause major weight gain, which can be good if you are ill. You gain weight over your whole body but especially on your torso and face (moon face). It is primarily water weight and should be very...

My son is also 5 and he gets frustruated if he doesn't do something right. He is not in an organized sport, such as basketball or soccer, but probably will in the fall. Exercise is so important, and even more so for those with CF. Has he tried other sports, and if so did he quit because he...

Kybert, That's freakin' hilarious. My day just got better!

This has nothing to do with a g-tube, but I was curious about what clinic you are talking about. My son sees Dr. Prestidge at Children's Medical center of Dallas. Is this the same Dr Prestidge you are talking about? We think he's awesome!!! On another note, what is a Nissen and what is the...

Caren, thanks for visiting my site. I don't sell beads, just jewelry, sorry. I need to update my site with some of my new stuff,but it should be working. maybe my server was temporarirly down. I love making jewelry too! I made a "65 roses bracelet" in honor of my son to raise money for the CF...

We just did our Great Strides walk this morning at Six Flags, in Arlington Texas. Over $263,000 were raised!!!! I don't think we have ever been so hot in our life, it was 108degrees. It was also my son's 5th birthday and he had a blast. By the time we went home his hair was covered with...

Hello Amy, I was on very high doses of Prednisone for a long time. I don't have CF, my son does, but I have taken quite a few of the same medicines used to treat CF. I went on prednisone at the age of ten and it did wonders for me, I went from 50lbs to about 70lbs in a very short time and...

I have seen some pretty strange things happen to a man's "member", in books and documentaries; but nailing your penis to a board is the most extreme. I would cringe, but not vomit. The hard part would be watching him suffer and die. I have laid in bed many nights not able to fall asleep...

I'm not Kelli, but I pumped. I rented a Medela from a distributor in my area, contact your hospital or LaLeche league to find on. It had the capability to pump both breasts at the same time, and fast! The Avent handheld pump worked very good as well. It is small and you have to manually...

my husband has several family members with CF, two aunts and two cousins. His niece`has all the symptoms of CF, but her mom refuses to test her. It really upsets me because she is twelve years old and has so many issues. She is very thin, despite her huge appetite, she has asthma and get...

How gross? I have a pretty strong stomach, but I do have my limits. He sounded like an amazing man that was self-confident, in tune with his body and was lucky enough to find someone to share his lifestlye with and deeply love each other.

I was on ebay earlier and I came across a movie about a man with CF. It's called Sick: The Life and Death of Bob Flanagan, Supermasochist. It sounds pretty interesting and a bit "unconventional". Has anyone heard or seen it?

My son has CF. His dad has two cousins and had an aunt with CF. We don't know of anyone on my side that has or had it. My dad's uncle died of pnuemonia at the age of three--but we don't if it was due to CF or something else.

I have osteoporosis due to long-term high doses of prednisone (from an unrelated disease). I broke my toe just from walking home from school when I was 12. I have also broken my foot and elbow. I take calcium, b12 shots and vitamin D, I tried Fosamax but it was too hard on my stomach. One...

Luke, I am not the one with CF my son is. I have Crohns disease and am much more likely to get GI infections, parasites, etc.. I had the Heliobactor pylori (sp?) infection. I've also had Salmonella, Giardia and a few more I can't begin to pronounce. I didn't know people with CF don't get GI...

I have taken Metronidozal (Flagyl) for a digestive infection. I was not allowed to have any alcohol, not even cough syrup. It will make you very sick. I wasn't thinking one day and I took some cold medicine. Within an hour I was vomiting so hard my stomach had bruises and I was hospitalized...

I am a big supporter of breastfeeding and its benefits. However, it makes me crazy when people try to force breastfeeding on new mothers. It is a very personal descision and one that should be up to the mother, not well-wishing friends or relatives. I agree that if the mother is uncomfortable...

Hello jody, I nursed my son for a year and had a very hard time when he weaned himself. I would have nursed him longer than a year, but the older he got the less interested he was. He would get distracted and want to go and play, and pretty soon he was only nursing at night and when he wanted...

Are portacaths permanent, if not then how often are they replaced? My son is the one with CF and fortunately hasn't needed IV treatment, but I would like to know more. I have a digestive disease and have been hospitalized too many times to count. My veins are destroyed! It usually takes 5 or...