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my son is double delta as well. He was diagnosed at 18 months after two mild bouts of pneumonia and failure to thrive. He is doing great and only spent one night in the hospital after polyp/tonsil/adenoid surgery. His lungs are nice and clear and he has never cultured anything yet. His main...

Hey notacrook, I am the mom of a five year old with CF. I couldn't stop laughing at your sweatpants and kitten comment! I refuse to be the "soccer mom", I'm a preachers kid (heehee), I can't live without my ipod, laptop, or cellphone, I love my old school pumas and ratty blue suede Airwalks...

Congrats on your little girl! I nursed my CF son for a year and he did wonderful, he has not cultured pseudomonas yet. Breastmilk has a natural antibiotic component and resists germs. Your milk will leak, more so in the first few weeks of nursing, but as long as you wear nursing pads and...

We live in Dallas and my son's school has already enrolled several families devasted by the hurricane. It has had a huge impact on my son and has forced him to look beyond himself. He was quite concerned for the kids who were unable to take their medicine and do their treatments. I can't even...

I live in Texas and it gets so hot you can fry an egg on the hood of your car. Well my son spit a loogie on my car and I still can't scrape all of it off!! It turned whitish and seemed to fuse to the car paint, a constant reminder of my son's amazing mucus!

My son started kindergarten yesterday also. He was very excited and found a friend in two seconds, and barely said bye to me. I was miserable all day. He is my only child and I am so sad that this chapter of our lives is over. I didn't cry until I went to Mcdonalds to get some breakfast and...

I completely understand where you are coming from. I also live in Texas and my son goes to the CF clinic at Children's in Dallas. When my son was diagnosed my husband had just lost his job and I was only working part-time--so we had no insurance. We enrolled in the CHIP program but even after...

my son had polyps, tonsils and adenoids removed when he was three. He stayed overnight for observation. He had the packing in his nose with the strings hanging out, we were told that they would remove them at his surgery follow-up a few days later. The ENT's receptionist said she couldn't...

That's awesome!!! You should take a picture of the "poopy" diaper and frame it! Congrats

I love the Debbie Downer skits!!! She reminds me of several people that I know. She makes even the most enjoyable experience depressing with her lovely comments. "Well, it's official. My doctor said.......(insert any medical problem). There is a lady at my church who does this every time I...

Hello, my name is Sheli and I have a five year old son with CF. I am 28 and have been married for six years. We live in Dallas Texas and my son sees Claude Prestidge at Childrens' Medical Center of Dallas. My husband works as a Sequil server DBA (i still don't know what that means!) I used...

I loved it!! It was by far my favorite representation of CF portrayed on mainstream TV. They described the disease and it's severity but they also focused on the other aspects of his life. His wife was amazing, his kids are great (it didn't mention if they were concieved naturally or with...

I loved it!! It was by far my favorite representation of CF portrayed on mainstream TV. They described the disease and it's severity but they also focused on the other aspects of his life. His wife was amazing, his kids are great (it didn't mention if they were concieved naturally or with...

Yea, I just finished watching it and was disappointed also. They got the genetic thing right (the percentiles of being a carrier, non carrier and actually having CF). The whole getting pregnant while you are already pregnant was a little weird. Here's the situation: The mother was pregnant...

I went on Lifetimes site and read the description of tonight's episode: Lu is caught in the middle when her patient's affair is revealed to the husband. When the couple's twins are born, one suffers from cystic fibrosis, a genetic disease that neither the mother nor her husband carries. Lu...

Don't worry if you miss it on tuesday, Bravo will run the episode MANY more times in the days following the original air date.

I have to agree with ETB, sometimes it is much worse to stay in an unhealthy marriage than to get divorced and move on. My husband and I (we have a son with CF) went through a very rough spot about six months ago. I even moved back in with my parents for a while. I too felt guilty and longed...

It's on Bravo.

Haileysmommy: My son was sitting next to me as I was reading this post and when I scrolled down he saw the picture of Hailey. He screamed and busted out laughing at her (in a good way) wearing those sunglasses. She's a cutie!!!

What CF doctor do you see in Texas? My son goes to Dr. Prestidge at Children's Medical Center of Dallas. I've never heard of Mucomyst, what is it?