Search results

Thanks for the input. I feel better now that I know it's somewhat normal. It's always flatter in the mornings and gets bigger as she eats through the day.

Thanks for the input. I feel better now that I know it's somewhat normal. It's always flatter in the mornings and gets bigger as she eats through the day.

We took Morgan back to the doc last night, we were worried about her getting dehydrated. She threw-up everything she ate yesterday and had barely ate or drank anything the last 2 days. She has a red throat and swollen tonsiles and pus on them. Her fever finally broke today, it had not gotten...

We took Morgan back to the doc last night, we were worried about her getting dehydrated. She threw-up everything she ate yesterday and had barely ate or drank anything the last 2 days. She has a red throat and swollen tonsiles and pus on them. Her fever finally broke today, it had not gotten...

Thanks for all the helpful posts. Lisav - Yes, I did find this. I called and we would qualify for that as long as we qualify in Alaska. Our TEFRA coordinator here said CF patients are receiving a hospital level of care, we're doing daily chores to hopefully prevent them from being in the...

Thanks for all the helpful posts. Lisav - Yes, I did find this. I called and we would qualify for that as long as we qualify in Alaska. Our TEFRA coordinator here said CF patients are receiving a hospital level of care, we're doing daily chores to hopefully prevent them from being in the...

I found out the information I needed re: TEFRA. This is also known as the Katie Beckett Act. They do not offer this in Colorado. How do you all do it without extra help besides insurance? Do you just have great insurance coverage? I would think that if my daughter was hospitalized even 2...

I found out the information I needed re: TEFRA. This is also known as the Katie Beckett Act. They do not offer this in Colorado. How do you all do it without extra help besides insurance? Do you just have great insurance coverage? I would think that if my daughter was hospitalized even 2...

Thanks for the quick replys. I called our Pediatrics triage nurse and she said I should bring her in. They got us in quickly and she has an ear infection and she's had her first dose of antibiotics. Thanks again!

Thanks for the quick replys. I called our Pediatrics triage nurse and she said I should bring her in. They got us in quickly and she has an ear infection and she's had her first dose of antibiotics. Thanks again!

My daughter started having a runny nose on Saturday and then Saturday am she had a fever of 102. Last night after she had been in bed for a while I went in to check on her and her fever was 103.2, she's never ran a fever like this. I'm just a little concerned, with CF kids, are you suppose to...

My daughter started having a runny nose on Saturday and then Saturday am she had a fever of 102. Last night after she had been in bed for a while I went in to check on her and her fever was 103.2, she's never ran a fever like this. I'm just a little concerned, with CF kids, are you suppose to...

We live in Alaska and are in the process of getting Morgan set up on TEFRA. Which once she's approved it's goes back 3 months and covers all her med bills. It's based on the child's income and covers everything insurance does not and all prescriptions will be $2 and doctor co-pays $3. We're...

We live in Alaska and are in the process of getting Morgan set up on TEFRA. Which once she's approved it's goes back 3 months and covers all her med bills. It's based on the child's income and covers everything insurance does not and all prescriptions will be $2 and doctor co-pays $3. We're...

Hello everyone! I was wondering if any of you or your kiddos have trouble with belly distention? This was the first sign to us that something was wrong with her. She's been on her enzymes for about 2 wks. now and she's still having the distention, we thought it would subside by now, but maybe...

Hello everyone! I was wondering if any of you or your kiddos have trouble with belly distention? This was the first sign to us that something was wrong with her. She's been on her enzymes for about 2 wks. now and she's still having the distention, we thought it would subside by now, but maybe...

I'm wondering if any parents here use Ambrotose for their kids? We're considering giving it a try. Our Morgan is 15 months and 20 lbs. If you have a child close to this age how much a day do you give them? Anyone's experiences w/ this product would be wonderful, either good or bad.

I'm wondering if any parents here use Ambrotose for their kids? We're considering giving it a try. Our Morgan is 15 months and 20 lbs. If you have a child close to this age how much a day do you give them? Anyone's experiences w/ this product would be wonderful, either good or bad.

Sometimes I mash a capsule in a bite of banana and just mix it well, Morgan seems to like that.

Sometimes I mash a capsule in a bite of banana and just mix it well, Morgan seems to like that.