Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. M

    natural supplements

    Juice Plus+ is a capsule supplement, not an actual juice. It's 17+ fruits and veggies. Dr. Sears, world renowned pedictrician highly recommends it for children and adults.
  2. M

    natural supplements

    The Juice Plus+ for kids is $22.75 a month and $39.95 a month for adults. I'm thinking of starting my 20 month old w/ CF on it.
  3. M

    natural supplements

    I'm just wondering if anyone uses any of these supplements? If so, what has your experience been with them and can you see a difference?
  4. M

    I need help with food ideas for my toddler

    Thanks for everyones helpful information. We did the fecal fat test and thank goodness it was only 3 days!!! Morgan is still being a picky eater though. HelpCureCF - The boost pudding would be great if my daughter liked pudding, I think she thinks it's too thick. Just so you know, you can...
  5. M

    does anyone else have dark thoughts???

    I feel these thoughts too. My daughter was diagnosed 5 months ago and I can only think about 1 day at a time. We do her daily treatments and meds and that's as far as I think. I get too emotional otherwise, like now, I've been teary-eyed reading this entire thread. Angelas - I'm so sorry...
  6. M

    I need help with food ideas for my toddler

    Hi - I've not posted in a while, just lurking here and there. I need some ideas for my 19 month old. We went to her doc on Friday and she's not gaining weight like she should and her belly is compacted w/ stool even though she goes about 5x a day. He upped her enzyme amount and we're going to...
  7. M

    How far to your clinic?

    I forgot to ask, is there anyone else here that goes to the Anchorage, AK Clinic?
  8. M

    How far to your clinic?

    Our clinic is 6 hours away. Our daughter was diagnosed 3 months ago and we've basically turned our lives upside down. My husband got a new job and we've bought a new home and are moving next week so we can be closer to our CF clinic and docs, we'll now only be 45 min - 1 hour away.
  9. M

    Tylenol vs Motrin

    We always use Motrin or Advil for our girls. My husband is a nurse and he thinks Tylenol is bad for you, he thinks it's been banned in most other countries. When Morgan was sick not long ago with an ear infection and high fevers our doc said the recommendation is NOT to give Tylenol, only...
  10. M

    Katie Beckett

    Hi Brandi - What state do you live in? We live in Alaska and we're in the process application for TEFRA, which is the Katie Beckett Act. Morgan has been approved for 2 parts of the process, we're just waiting on the disability part. Our care coordinator helped us fill out all the paperwork...
  11. M

    generic enzymes

    Hi everyone! I know it's been a while since I posted about generic enzymes but I thought I'd give Morgan's update on them. We went to clinic for the first time April 6. Before going to clinic we ended up putting her on the Ultrase enzymes and about a week before we went I switched her back to...
  12. M

    generic enzymes

    I'm sorry I wasn't logged in on that last post. It was me, Misty that replied.
  13. M

    generic enzymes

    The pulmonologist gave me papers showing where generic's are not FDA approved and studies that have been done. I also found on ccf.org a press release re: this same thing. I found it by doing a search for generic enzymes. This doc did say it's illegal for pharmacies to substitute without the...
  14. M

    generic enzymes

    My daughter was diagnosed w/ CF 1 month ago. We were in AZ when we found out and the pharmacy there gave us Pangestyme for her enzymes. We went to see the pulmonologist in Anchorage on Tuesday, which will be her doctor. He told us that generic's are not FDA approved and they're not as good as...
  15. M

    looking for Missa

    bumping up
  16. M

    looking for Missa

    bumping up
  17. M

    looking for Missa

    Hi Missa - I'd like to know what exact products you have your baby on as far as the glyconutrients go? My daughter will be 16 months on the 5th and we're thinking of signing up for the Hope program through Manna Relief. Was your baby doing bad and then got better? Please tell me about your...
  18. M

    looking for Missa

    Hi Missa - I'd like to know what exact products you have your baby on as far as the glyconutrients go? My daughter will be 16 months on the 5th and we're thinking of signing up for the Hope program through Manna Relief. Was your baby doing bad and then got better? Please tell me about your...
  19. M

    Mannatech Ambrotose

    I've read these websites and testimonies on both sides for this product. Does anyone here use it? If so, how much for a 15 month old per day???
  20. M

    Mannatech Ambrotose

    I've read these websites and testimonies on both sides for this product. Does anyone here use it? If so, how much for a 15 month old per day???
Top