Cystic Fibrosis Forum (EXP)

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  1. M

    looking for Debs2girls

    Hey Deb - I tried to e-mail you but it didn't go through. I was wondering if you have any JP+ Gummies for sale you can send me? Thanks, Misty
  2. M

    looking for Debs2girls

    Hey Deb - I tried to e-mail you but it didn't go through. I was wondering if you have any JP+ Gummies for sale you can send me? Thanks, Misty
  3. M

    natural supplements

    Hey Debbie - That's great that her vitamin levels are so high! I'm hoping Morgan's will be too in November. I would love to meet you while I'm in Broken Arrow, I'll be there the evening of Sept. 9th - Sept. 11th. I'll be in Weatherford or OKC the rest of the time from Sept. 2nd - Sept. 18th...
  4. M

    Debs2girls

    Hi Deb - I posted another message under nutrition re: Juice Plus+ for you and so did someone else that's interested in trying it.
  5. M

    questions about nebulizer machines

    I also found the CF publication very interesting. It looks like, by this publication, we can use one of the other compressors that we already have like some of you are. Thanks for the info on this.
  6. M

    questions about nebulizer machines

    We use the PulmoAide 5650D for my daughter's albuterol and pulmozyme. We're going on vacation and I was going to find one to buy by my parents and just leave it there. I'm having trouble finding this model. I also have a PRONEB Ultra and a compact PulmoAide model #3655D that are smaller that...
  7. M

    pictures

    Just thought I'd see if I could get a picture up.
  8. M

    pictures

    How do I add a photo to my signature??? Thank you.
  9. M

    natural supplements

    Hey Debbie - I am now taking JP+ and I also have both my girls taking it too. They are taking the Gummies, how many should they each be taking? What does your daughter take? Does it keep her vitamin levels up where they should be? I talked to our nutritionist at clinic last week and she...
  10. M

    tiring out easily

    Is it common for toddlers w/ CF to tire out more easily? or any child/person for that matter w/ CF? It seems like Morgan is wearing out real easy and she's been taking a 4 hour nap the last few days. I just let her sleep the 4 hours b/c I feel like if she's sleeping that long she must need the...
  11. M

    working moms

    I really enjoy staying home w/ my girls (most of the time). I've been feeling down the last few days though, we're new in the community, I'm really missing my girlfriends to get together w/ the kids, and I'm feeling so cooped up in the house. My 3 1/2 yr. old just really drives me crazy...
  12. M

    working moms

    Thanks for all the input and advise. We've recently moved to a new town about 2 1/2 months ago and prior to us moving I worked part-time for a federal magistrate judge as a secretary and in-court clerk and I loved it so much. The same judge I worked for has put in his judgeship app down by...
  13. M

    natural supplements

    Thanks Debbie - I'm still waiting on my juice plus to get here, I'm going to stick w/ JP+, I was just curious about the other. I was real intriqued w/ Dr. Sears behind it so much. I've been reading on his website lately and he has so much good info on nutrition. I'm having my husband stop...
  14. M

    working moms

    Hi - I'm just wondering if any of you moms work full-time and how it works out for you? I say home now w/ my 2 girls but there may be an opportunity to work full-time in a few months at a federal job. So, I'm just curious how you all do it and if it's worth it?
  15. M

    natural supplements

    Hi Debbie - Thanks for the JP+ info. Have you heard of the Nature's Way Orchard Fruits and Garden Veggies? They sound very close to JP+ and have a few more fruits/veggies in them for a lot less money. I've read some testimonies online that say they're just as good. Bonnie - I've had Morgan...
  16. M

    natural supplements

    Hi Liza - I've seen this before, I've spent many, many hours online researching this product and ingredients. In my opinion, Dr. Weil says what he needs to to stay in good w/ both the medical view side and the natural side. That's what it seems like to me anyway. Have you looked into this...
  17. M

    natural supplements

    I just want to say I think everyone should be researching the Xango product. I've been reading lots of information on this and how wonderful xanthones are for you that come from the mangosteen fruit. It's suppose to help with many different things i.e. how amounts of antioxidants, digestion...
  18. M

    Humidifier

    My daughter's doc said the same thing. No humidifiers or no candles (I was very dissappointed by that one). I used a humidifier for several months in the girls room for white noise at night and during nap time before I found out Morgan had CF.
  19. M

    I need help with food ideas for my toddler

    Just thought I'd give an update. We got Morgan's Fecal Fat Test back and she's losing 37% of the fat she's taking in daily. She's averaging 56g fat a day, so she has a pretty big loss. We're going to be getting her on Creon enzymes next week and she if she'll do better. She's still being a...
  20. M

    natural supplements

    Ehtansky21 - What other glyconutrients is your son on? How old is he? mom2brooke - Can you tell a difference in Brooke yet? Do you take the Juice Plus also? How is it making you feel?
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