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Hello, I am very sorry for your news. I can't speak from the mom perspective, but I am a 27 yr old w/CF and a genetic counselor. Did your son have the Ambry gene sequencing, where the lab looks at the entire (almost) gene? If not, he definitely shoud have that done. I say they look at almost...

Hello, I am very sorry for your news. I can't speak from the mom perspective, but I am a 27 yr old w/CF and a genetic counselor. Did your son have the Ambry gene sequencing, where the lab looks at the entire (almost) gene? If not, he definitely shoud have that done. I say they look at almost...

Hello, I am very sorry for your news. I can't speak from the mom perspective, but I am a 27 yr old w/CF and a genetic counselor. Did your son have the Ambry gene sequencing, where the lab looks at the entire (almost) gene? If not, he definitely shoud have that done. I say they look at almost...

Hello, I am very sorry for your news. I can't speak from the mom perspective, but I am a 27 yr old w/CF and a genetic counselor. Did your son have the Ambry gene sequencing, where the lab looks at the entire (almost) gene? If not, he definitely shoud have that done. I say they look at almost...

Hello, <br /> <br />I am very sorry for your news. I can't speak from the mom perspective, but I am a 27 yr old w/CF and a genetic counselor. Did your son have the Ambry gene sequencing, where the lab looks at the entire (almost) gene? If not, he definitely shoud have that done. I say they look...

Hi Sonia, They did synergy testing on my bronch sample - no combos of meds were effective against my PA.

Hi Sonia, They did synergy testing on my bronch sample - no combos of meds were effective against my PA.

Hi Sonia, They did synergy testing on my bronch sample - no combos of meds were effective against my PA.

Hi Sonia, They did synergy testing on my bronch sample - no combos of meds were effective against my PA.

Hi Sonia, <br /> <br />They did synergy testing on my bronch sample - no combos of meds were effective against my PA.

Hi all, So, since Nov.'08,I have consistantly cultured very resistant PA. In 11/08, I was having fevers and not responding to the abx I was on. The sputum culture showed that I was resistant to everything but Tobra and Colistin. I was treated with those two drugs, and my FEV1 recovered. Then...

Hi all, So, since Nov.'08,I have consistantly cultured very resistant PA. In 11/08, I was having fevers and not responding to the abx I was on. The sputum culture showed that I was resistant to everything but Tobra and Colistin. I was treated with those two drugs, and my FEV1 recovered. Then...

Hi all, So, since Nov.'08,I have consistantly cultured very resistant PA. In 11/08, I was having fevers and not responding to the abx I was on. The sputum culture showed that I was resistant to everything but Tobra and Colistin. I was treated with those two drugs, and my FEV1 recovered. Then...

Hi all, So, since Nov.'08,I have consistantly cultured very resistant PA. In 11/08, I was having fevers and not responding to the abx I was on. The sputum culture showed that I was resistant to everything but Tobra and Colistin. I was treated with those two drugs, and my FEV1 recovered. Then...

Hi all, <br /> <br />So, since Nov.'08,I have consistantly cultured very resistant PA. In 11/08, I was having fevers and not responding to the abx I was on. The sputum culture showed that I was resistant to everything but Tobra and Colistin. I was treated with those two drugs, and my FEV1...

Hi all, I got my port in July, and this is my first round of antibiotics with the port. Right now, when I shower, I cover up the area w/a ziploc bag or some other plastic taped to my skin. I was wondering if anyone had any other creative ideas. Thanks!

Hi all, I got my port in July, and this is my first round of antibiotics with the port. Right now, when I shower, I cover up the area w/a ziploc bag or some other plastic taped to my skin. I was wondering if anyone had any other creative ideas. Thanks!

Hi all, I got my port in July, and this is my first round of antibiotics with the port. Right now, when I shower, I cover up the area w/a ziploc bag or some other plastic taped to my skin. I was wondering if anyone had any other creative ideas. Thanks!

Hi all, I got my port in July, and this is my first round of antibiotics with the port. Right now, when I shower, I cover up the area w/a ziploc bag or some other plastic taped to my skin. I was wondering if anyone had any other creative ideas. Thanks!

Hi all, <br /> <br />I got my port in July, and this is my first round of antibiotics with the port. Right now, when I shower, I cover up the area w/a ziploc bag or some other plastic taped to my skin. I was wondering if anyone had any other creative ideas. <br /> <br />Thanks!