Cystic Fibrosis Forum (EXP)

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  1. G

    Weight Gain

    I had a tough year last year. 2 tune ups and multiple oral antibiotic rounds with most of the time feeling crappy all year. I am off to a better start this year, Praise GOD. But I too suffer from lack of weight gain. Lost alot of weight last year, can not get it back on. BUT my appetite is for...
  2. G

    Weight Gain

    I had a tough year last year. 2 tune ups and multiple oral antibiotic rounds with most of the time feeling crappy all year. I am off to a better start this year, Praise GOD. But I too suffer from lack of weight gain. Lost alot of weight last year, can not get it back on. BUT my appetite is for...
  3. G

    Death in family

    I really do not think there is right or wrong answer and you should not feel guilty whatever you decide. But if you are going there to be there for your mom mainly, then I say wait to you feel better so you can really support her when you are there and not get super sick from pushing yourself...
  4. G

    Death in family

    I really do not think there is right or wrong answer and you should not feel guilty whatever you decide. But if you are going there to be there for your mom mainly, then I say wait to you feel better so you can really support her when you are there and not get super sick from pushing yourself...
  5. G

    CF center(s) in Phoenix, AZ

    Maybe someone can chime in who goes there. I did research a year back when we were considering moving to Phoenix and a couple people that I talked to that went there did not have good things to say and preferred Tucson's center. Problem. Tucson does not accept new adults although maybe that has...
  6. G

    CF center(s) in Phoenix, AZ

    Maybe someone can chime in who goes there. I did research a year back when we were considering moving to Phoenix and a couple people that I talked to that went there did not have good things to say and preferred Tucson's center. Problem. Tucson does not accept new adults although maybe that has...
  7. G

    Altera and Tobi anyone?

    I was told not to use TOBI in the TRIO only reformulated Tobra. Which I know you know. I personally would not fool around with putting half of TOBI . I mean how do you know you really got half. I have used the TRIO and Alterra and me too have used the Alterra for reformulated Tobra and use the...
  8. G

    Altera and Tobi anyone?

    I was told not to use TOBI in the TRIO only reformulated Tobra. Which I know you know. I personally would not fool around with putting half of TOBI . I mean how do you know you really got half. I have used the TRIO and Alterra and me too have used the Alterra for reformulated Tobra and use the...
  9. G

    Need help!!!!

    Oh man! I would google Beth Sufian and get her number and call her! She has CF and is an attorney and gets people with CF medicare, medicaid, ssi etc. She is a pro. Don't fool around and got through it yourself let her help you and get it done. I do not have her number off hand otherwise I would...
  10. G

    Need help!!!!

    Oh man! I would google Beth Sufian and get her number and call her! She has CF and is an attorney and gets people with CF medicare, medicaid, ssi etc. She is a pro. Don't fool around and got through it yourself let her help you and get it done. I do not have her number off hand otherwise I would...
  11. G

    Whose with somebody and the parents throw insulting comments at you?

    Maybe you can sit down with her and explain what CF is, how it affects your life and maybe even show her some articles or youtube videos on CF and how it affects your daily living. Maybe she just needs to be educated and if after that she still treats you the same way then ask her what is wrong...
  12. G

    Whose with somebody and the parents throw insulting comments at you?

    Maybe you can sit down with her and explain what CF is, how it affects your life and maybe even show her some articles or youtube videos on CF and how it affects your daily living. Maybe she just needs to be educated and if after that she still treats you the same way then ask her what is wrong...
  13. G

    Trouble keeping/making friends

    AHHH. 15 and 16 is such a rough age. I am so sorry you feel alone.Maybe you can try to join some clubs and meet new people or people you would not normally meet. Hang in there. I am sorry I do not have such great advice....<br>
  14. G

    Trouble keeping/making friends

    AHHH. 15 and 16 is such a rough age. I am so sorry you feel alone.Maybe you can try to join some clubs and meet new people or people you would not normally meet. Hang in there. I am sorry I do not have such great advice....<br>
  15. G

    Precision Medical 50 Easy Comp Compressor

    Thinking of getting a new compressor. Do you use it? Do you like it? How long does it take to do your meds? Can you use the Pari LC Plus nebs and tubing? Cost? Did insurance cover it? Any and all information would be great! Thanks!<br>
  16. G

    Precision Medical 50 Easy Comp Compressor

    Thinking of getting a new compressor. Do you use it? Do you like it? How long does it take to do your meds? Can you use the Pari LC Plus nebs and tubing? Cost? Did insurance cover it? Any and all information would be great! Thanks!<br>
  17. G

    Havoc How are You Doing?

    Glad you are home! Hang in there!!!!<br><br>
  18. G

    Havoc How are You Doing?

    Glad you are home! Hang in there!!!!<br><br>
  19. G

    Tap Water

    She said NO TAP water at all. If I must use it then boil the tap water for 10 mins and keep in a sealed container or just use distilled she said. So I am not taking any chances and will use distilled for every step. But makes it interesting cause I know there are TONS of people that use tap...
  20. G

    Tap Water

    She said NO TAP water at all. If I must use it then boil the tap water for 10 mins and keep in a sealed container or just use distilled she said. So I am not taking any chances and will use distilled for every step. But makes it interesting cause I know there are TONS of people that use tap...
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