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  1. G

    Thank You

    I am so sorry. Find peace, acceptance and love through your journey. Stay strong!<br>
  2. G

    Thank You

    I am so sorry. Find peace, acceptance and love through your journey. Stay strong!<br>
  3. G

    When you are sick how do you sleep?

    Musclemania : I too had that kind of cough when laying down to go to sleep at night while on cayston! I finally said forget it. This is making my quality of life worse. Now I just do TOBI but constantly NOT every other month and it is working out good so far. Interesting......<br><br>When I am...
  4. G

    When you are sick how do you sleep?

    Musclemania : I too had that kind of cough when laying down to go to sleep at night while on cayston! I finally said forget it. This is making my quality of life worse. Now I just do TOBI but constantly NOT every other month and it is working out good so far. Interesting......<br><br>When I am...
  5. G

    When you are sick how do you sleep?

    Musclemania : I too had that kind of cough when laying down to go to sleep at night while on cayston! I finally said forget it. This is making my quality of life worse. Now I just do TOBI but constantly NOT every other month and it is working out good so far. Interesting......<br><br>When I am...
  6. G

    Waiting on Lungs

    I too hope Julie will get her chance!!!! Stay strong and a door will open!<br>
  7. G

    Waiting on Lungs

    I too hope Julie will get her chance!!!! Stay strong and a door will open!<br>
  8. G

    Waiting on Lungs

    I too hope Julie will get her chance!!!! Stay strong and a door will open!<br>
  9. G

    Need Advice Please

    I use to get the redness, purpleness and blisters with Tagaderm and now they use IV3000 and I get a very mild skin reaction. I like the idea of the rolling storage bin thing for meds. They also make a cardboard type kind with 3 deep drawers and you can get pretty patterns to match your decor. I...
  10. G

    Need Advice Please

    I use to get the redness, purpleness and blisters with Tagaderm and now they use IV3000 and I get a very mild skin reaction. I like the idea of the rolling storage bin thing for meds. They also make a cardboard type kind with 3 deep drawers and you can get pretty patterns to match your decor. I...
  11. G

    Need Advice Please

    I use to get the redness, purpleness and blisters with Tagaderm and now they use IV3000 and I get a very mild skin reaction. I like the idea of the rolling storage bin thing for meds. They also make a cardboard type kind with 3 deep drawers and you can get pretty patterns to match your decor. I...
  12. G

    VX770

    Great news on this drug, but I am jealous I can not take it! I am DDF508..... I kinda feel a lil angry too.... Oh well. I sure hope they find a combination for us DDF508's. But I am glad VX770 is coming out ( if FDA approves).... Sigh,,,,,,,,<br>
  13. G

    VX770

    Great news on this drug, but I am jealous I can not take it! I am DDF508..... I kinda feel a lil angry too.... Oh well. I sure hope they find a combination for us DDF508's. But I am glad VX770 is coming out ( if FDA approves).... Sigh,,,,,,,,<br>
  14. G

    VX770

    Great news on this drug, but I am jealous I can not take it! I am DDF508..... I kinda feel a lil angry too.... Oh well. I sure hope they find a combination for us DDF508's. But I am glad VX770 is coming out ( if FDA approves).... Sigh,,,,,,,,<br>
  15. G

    When to go to the hospital

    Take some advil for the fever. I would not fool around too long for a "tune up". I am sure he knows when he is ready to get it done and over with..... Maybe he can do IV treatment with homehealthcare? Good luck!<br>
  16. G

    When to go to the hospital

    Take some advil for the fever. I would not fool around too long for a "tune up". I am sure he knows when he is ready to get it done and over with..... Maybe he can do IV treatment with homehealthcare? Good luck!<br>
  17. G

    When to go to the hospital

    Take some advil for the fever. I would not fool around too long for a "tune up". I am sure he knows when he is ready to get it done and over with..... Maybe he can do IV treatment with homehealthcare? Good luck!<br>
  18. G

    Feeling bad more times than good

    thanks for all the great replies. Makes me feel better! What is MAC? Does it show up in sputum cultures? Might be a good idea to see if I do loose o2 when working out? I will look into that. the red blood cell count thing is something I will look into too! thanks all you are FANTASTIC! Keep up...
  19. G

    Feeling bad more times than good

    thanks for all the great replies. Makes me feel better! What is MAC? Does it show up in sputum cultures? Might be a good idea to see if I do loose o2 when working out? I will look into that. the red blood cell count thing is something I will look into too! thanks all you are FANTASTIC! Keep up...
  20. G

    Feeling bad more times than good

    thanks for all the great replies. Makes me feel better! What is MAC? Does it show up in sputum cultures? Might be a good idea to see if I do loose o2 when working out? I will look into that. the red blood cell count thing is something I will look into too! thanks all you are FANTASTIC! Keep up...
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