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So I was told by my CF nurse to not us ANY tap water on my neb pieces. This makes it really hard to use distilled water for the washing step cause you have to use SOOOOOOO much to get all that soap off the cups and pieces. What are you all doing? Have you stopped using Tap water and if so then...

So I was told by my CF nurse to not us ANY tap water on my neb pieces. This makes it really hard to use distilled water for the washing step cause you have to use SOOOOOOO much to get all that soap off the cups and pieces. What are you all doing? Have you stopped using Tap water and if so then...

I am sorry to hear this is happening. I know for me and even when I was a child if orals did not work then in the hospital I went for a tune up. No fooling around. I was dx at 2 so I was going in the hospital at a young age too. The thing with CF is you can not let it get out of hand. Gotta nip...

I am sorry to hear this is happening. I know for me and even when I was a child if orals did not work then in the hospital I went for a tune up. No fooling around. I was dx at 2 so I was going in the hospital at a young age too. The thing with CF is you can not let it get out of hand. Gotta nip...

Oh I feel for you! College is such a new and exciting experience and I know I always wanted to be involved and do what everyone else was doing. But I feel for ya cause it is hard to be strong and independent and deal with CF and its limitations and still feel like "one of the gang." Being able...

Oh I feel for you! College is such a new and exciting experience and I know I always wanted to be involved and do what everyone else was doing. But I feel for ya cause it is hard to be strong and independent and deal with CF and its limitations and still feel like "one of the gang." Being able...

Oh I feel for you! College is such a new and exciting experience and I know I always wanted to be involved and do what everyone else was doing. But I feel for ya cause it is hard to be strong and independent and deal with CF and its limitations and still feel like "one of the gang." Being able...

Oh I can relate. My health has taken a MAJOR nosedive starting in Jan of 2011 and has continued ALL year! I hear ya loud and clear! Hopefully we all can have a good stretch of health coming up soon! Hang in there!!!!<br><br><br>

Oh I can relate. My health has taken a MAJOR nosedive starting in Jan of 2011 and has continued ALL year! I hear ya loud and clear! Hopefully we all can have a good stretch of health coming up soon! Hang in there!!!!<br><br><br>

Oh I can relate. My health has taken a MAJOR nosedive starting in Jan of 2011 and has continued ALL year! I hear ya loud and clear! Hopefully we all can have a good stretch of health coming up soon! Hang in there!!!!<br><br><br>

I use to ALWAYS stay in the hospital for the whole process but now and for many years now I do it at home. I get the picc done in the hospital and then leave. It has its advantages and disadvantages. I like being home in my own bed, food, can go outside etc. but the hard part is the constant...

I use to ALWAYS stay in the hospital for the whole process but now and for many years now I do it at home. I get the picc done in the hospital and then leave. It has its advantages and disadvantages. I like being home in my own bed, food, can go outside etc. but the hard part is the constant...

I use to ALWAYS stay in the hospital for the whole process but now and for many years now I do it at home. I get the picc done in the hospital and then leave. It has its advantages and disadvantages. I like being home in my own bed, food, can go outside etc. but the hard part is the constant...

I have not had that problem with TOBI but did have it with the Cayston and had to finally stop it. Cayston worked for me really well in the beginning and then stopped and I was coughing more when on it. I do not have troubles with TOBI. Maybe are you suffering from an exacerbation? Allergies...

I have not had that problem with TOBI but did have it with the Cayston and had to finally stop it. Cayston worked for me really well in the beginning and then stopped and I was coughing more when on it. I do not have troubles with TOBI. Maybe are you suffering from an exacerbation? Allergies...

I have not had that problem with TOBI but did have it with the Cayston and had to finally stop it. Cayston worked for me really well in the beginning and then stopped and I was coughing more when on it. I do not have troubles with TOBI. Maybe are you suffering from an exacerbation? Allergies...

Thanks for sharing your story Eric. I too remember those mist tents. I was in one, one time I was in the hospital as a child... Great to hear your 52! Stay strong!!!!<br>

Thanks for sharing your story Eric. I too remember those mist tents. I was in one, one time I was in the hospital as a child... Great to hear your 52! Stay strong!!!!<br>

Thanks for sharing your story Eric. I too remember those mist tents. I was in one, one time I was in the hospital as a child... Great to hear your 52! Stay strong!!!!<br>

I am so sorry. Find peace, acceptance and love through your journey. Stay strong!<br>