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Your welcome Eli. I am actually in Perth. Some more answers for you...they decided it is no longer necessary to sterilise bottle etc because they believe that babies should start building their own immunities asap. And honestly if you think about how quickly the little buggers start putting...

To answer your question Eli about the Australian advice of no longer needing to sterilise everything....it has actually only changed in the last 12 months. My youngest is 6.5 months which is how I found out but like I said I have chosen to sterilise her bottles for 12 months and I don't even...

Up until this point they have really been in the research phase of using the equipment as even though they had the equipment, they didn't have the data to establish what the figures meant. It would be pointless to compare a babies figures with that of an older child or adult so they have used...

The common interest in these forums is helping each other. Helping each other to learn, grow and cope. However we are linked to the disease is only a small part of the reason we are so impacted by it, and the fact is we are ALL impacted by it. I understand you may want to share thoughts and...

The reason for them now advising not to do the tilt is because many cfers suffer from acid reflux and this adds to the discomfort. I am guessing your toddler is now very active with running and jumping so I would have to say that it would be easier if he didn't like the sitting up PT because...

I used to get worried about Mikayla's runnyh noses at that age...she would get the clear runny nose and slightly crackly cough a couple of times a day. As a new mother dealing with CF as well it was all too confusing. It actually turned out she was just teething! When babies are teething they...

Glad I could help. I thought I should also add for damiens moms peace of mind, this is perhaps the least scary procedure to have put my children through. God knows we do put them through a lot and for very good reason but I especially like this one becasue there is no pain, needles or blood...

Here in Australia the latest advice on this topic is that you DON'T need to steralise any baby equipment including bottles. However this is advice given to everyone on the basis your child is healthy. After my baby was born with CF also I spoke to the CF clinic and they said it is my decision to...

Ok perhaps I can help. In recent years they have designed medical equipment specifically to gather information from infants and they are still studying the results they get in comparison to the lung capacity of healthy children. They generally do this by sedating the infant (with a cough mixture...

The three things I would suggest looking into is 1. Thyroid 2. Diabetes & 3. Ovaries....Sometimes issues with the ovaries (in fact it is quite common these days) can cause, due to hormonal imbalances, weight gain and irregular periods. Hopefully it is nothing but it is always good to talk to...

I have been told that Australia is now going to be able to get the Vest but with a price tag of about 24'000.00! Hmmmmm buy a car or buy the Vest???? I personally think medical equipment makers are experts in extortion. In saying that I will be seriously considering purchasing one. Medicare...

Hi Donna, Because he has a short gut I am not sure what advice I can give you but I would recommend to always check with your dietician first before taking on board anyones opinions...with that in mind here is mine! Sounds like he is geting plenty of calories so thats a great start. You are...

We have always given our childrens enzymes at the beginning of the meal so they are present in the digestive system as the food passes through otherwise they are of no use. I am curious to know if there is a reason why you might have been told to give them in the middle and end of the meal....I...

Both my daughters have just finished a course of tobramycin and it was the first time my youngest has had to have it. They both have 2mls tobi and 2mls saline but they use different pots attached to their masks. Mikayla is a standard one and it takes about 15 mins to deliver the medicine, where...

Wow and I thought I had my hands full with 3 kids in the house and hubby working away (1 step son and 2 daughters). The thing with CF is that you just don't know until the test results come back. CF is a complex disease which shows it's face in many different forms for different people. Certain...

Is it the CF clinic doctor who told you to cut back the enzymes? Since enzymes help to absorb the fat in food I would assume that cutting back would have an even worse outcome. Of course I am not a doctor though but it does sound strange. My daughter has significant malabsorption problems which...

Now that is interesting! I wonder why a dyslexic person would do that? Well I really do hope everything works out ok for you and your whole family. Trying to treat your niece as normal as possible is extremely important but that doesn't mean you can't have a frank conversation with her dad...

I definately don't think you are an ogre and every parent has the right to be concerned for and put their child first. Its only natural. What I try to keep in mind is that my child has special needs which I expect people to adjust to so they should be able to expect the same from me with their...

I would more concerned about the 13 year old in general to be honest. She lost her mother 4 years ago and that can affect children in many different ways - you also said she won't listen, well behavioral problems are a strong indicator that she needs help. I am not sure of your closeness or...

It's amazing how you can feel such hope for that 10% of Cfer's while in the same breath feel sad that it doesn't mean it will help, in our case, my daughters. What I do hope is that it will be a huge success and lead to new developments for other gene types. I have attached a link which explains...